[aftermathman]

http://www.melodika.net/index.php?op...5216&Itemid=54

Has the Helen Foundation found the cure in a shed at the bottom of the garden.

Has anyone any views as to the credibility of this research ?

Neil.

[lurkingforacure]

Originally Posted by aftermathman

http://www.melodika.net/index.php?op...5216&Itemid=54

Has the Helen Foundation found the cure in a shed at the bottom of the garden.

Has anyone any views as to the credibility of this research ?

Neil.

We will look into participating in this trial, thank you very much for posting it! Years ago, we wondered why no one was looking at this and were told it was because it is dangerous to take long-term, same as antibiotics. Particularly, we wondered why no one would inject it into the brain directly, since that is where it needs to be. We were almost laughed out of the neuro's office on that one. Nice to know that we provide a source of humor for those cocktail parties.

But seriously, antibiotics also have shown dramatic improvement in PD symptoms for many people so I wonder if there is much more to the anti-inflammatory aspect than originally thought. This will be really interesting to watch, thanks again.

[soccertese]

Originally Posted by aftermathman

http://www.melodika.net/index.php?op...5216&Itemid=54

Has the Helen Foundation found the cure in a shed at the bottom of the garden.

Has anyone any views as to the credibility of this research ?

Neil.

http://www.helenfoundation.com/Staff/
3 staff people? can"t find a link to the "study". not sure what FDA compliant means but sure sounds impressive.

[Bob Dawson]

Everything just keeps getting stranger and stranger. Or, you could say, more and more strange. I figure, something from Melodika Net, :"the Home of Music" is not likely to transmit cutting-edge research into Parkinson's.
And then some very reasonable people say "Seems like a good bet to pursue."
It is confusing to follow, as I am accustomed to a narrative where there is a bad guy and a good guy, and after awhile the good guy wins. You can tell who is who because one wears a white hat and the other wears a black hat.

So I often want to just obey orders: "Take pill. Pharma good. All else bad."

Or "Organic only; no devil drugs.''

I WANT that kind of certainty and maybe some researchers do too. It can blind me to alternatives, because I don't want alternatives that have to be compared; I want the Head of Research to tell me there is only one road and we are on it. And as for the Road Less Travelled, they neglect to tell you that there are 100 good reasons why it is less travelled.

But Parkinson's does not grant us any certainty in anything. There is a huge electric sign up there, saying, "THIS IS A TEST."

Parkinson's research and symptoms combined keep showing us a klaidescope in the form of a jig-saw puzzle where half of the pieces are missing. It seems to be a very elaborate puzzle inside a very complicated maze inside an abandoned castle lost deep in the forest.

And yet it could still be something simple; and everybody will say we always sort of thought so, more or less, a lot of the time, we figured, maybe.

[soccertese]

Originally Posted by Bob Dawson

Everything just keeps getting stranger and stranger. Or, you could say, more and more strange. I figure, something from Melodika Net, :"the Home of Music" is not likely to transmit cutting-edge research into Parkinson's.
And then some very reasonable people say "Seems like a good bet to pursue."
It is confusing to follow, as I am accustomed to a narrative where there is a bad guy and a good guy, and after awhile the good guy wins. You can tell who is who because one wears a white hat and the other wears a black hat.

So I often want to just obey orders: "Take pill. Pharma good. All else bad."

Or "Organic only; no devil drugs.''

I WANT that kind of certainty and maybe some researchers do too. It can blind me to alternatives, because I don't want alternatives that have to be compared; I want the Head of Research to tell me there is only one road and we are on it. And as for the Road Less Travelled, they neglect to tell you that there are 100 good reasons why it is less travelled.

But Parkinson's does not grant us any certainty in anything. There is a huge electric sign up there, saying, "THIS IS A TEST."

Parkinson's research and symptoms combined keep showing us a klaidescope in the form of a jig-saw puzzle where half of the pieces are missing. It seems to be a very elaborate puzzle inside a very complicated maze inside an abandoned castle lost deep in the forest.

And yet it could still be something simple; and everybody will say we always sort of thought so, more or less, a lot of the time, we figured, maybe.

bob, things have always been strange, there's always been snake oil and elixers being peddled. the internet just makes it easier to make things look more credible. just my opinion.

[reverett123]

BOB, THIS IS GOD! SORRY I DIDN"T GET BACK TO YOU SOONER BUT I'VE BEEN KIND OF BUSY. I WANTED TO TELL YOU THAT ACETYL-L-CARNITINE IS THE KEY. AT LEAST I THINK IT IS....

Originally Posted by Bob Dawson

Everything just keeps getting stranger and stranger. Or, you could say, more and more strange. I figure, something from Melodika Net, :"the Home of Music" is not likely to transmit cutting-edge research into Parkinson's.
And then some very reasonable people say "Seems like a good bet to pursue."
It is confusing to follow, as I am accustomed to a narrative where there is a bad guy and a good guy, and after awhile the good guy wins. You can tell who is who because one wears a white hat and the other wears a black hat.

So I often want to just obey orders: "Take pill. Pharma good. All else bad."

Or "Organic only; no devil drugs.''

I WANT that kind of certainty and maybe some researchers do too. It can blind me to alternatives, because I don't want alternatives that have to be compared; I want the Head of Research to tell me there is only one road and we are on it. And as for the Road Less Travelled, they neglect to tell you that there are 100 good reasons why it is less travelled.

But Parkinson's does not grant us any certainty in anything. There is a huge electric sign up there, saying, "THIS IS A TEST."

Parkinson's research and symptoms combined keep showing us a klaidescope in the form of a jig-saw puzzle where half of the pieces are missing. It seems to be a very elaborate puzzle inside a very complicated maze inside an abandoned castle lost deep in the forest.

And yet it could still be something simple; and everybody will say we always sort of thought so, more or less, a lot of the time, we figured, maybe.

[reverett123]

My comment from another site:

My instincts and a little research tell me this guy has the right ideas but is a crook. First, the "announcement" is a press release that anyone could put out. They worked at making it seem like something more, but it is still a press release. And the trademarking of the term "Micro Release" is pretty tacky from a scientific view but just fine from a marketing view. I found some discussion by folks in 2008 who had attended one of the "seminars" and they were urged to sign up then and there for $ 6,000 each. Good money if you can get it. Finally I checked PubMed for any papers authored by Virgil Stenberg and came up zero. Keep your money. That having been said, the guy does seem to know more than most about the inflammatory issues related to PD and provides some plausable answers to some questions such as why do we handle stress so well in the early days only to be devastated by it in the later. I suggest that you read the release but keep your wallet out iof sight.

[jeanb]

Neil, I have no idea about the credibility of this research, BUT they are located not far from my home. I'll visit their office - if not this week, then next week for sure.

I"ll let you know what I find out.

Jean

Originally Posted by aftermathman

http://www.melodika.net/index.php?op...5216&Itemid=54

Has the Helen Foundation found the cure in a shed at the bottom of the garden.

Has anyone any views as to the credibility of this research ?

Neil.

[jeanb]

They are claiming to cure all of the above.

jean

[aftermathman]

Originally Posted by jeanb

Neil, I have no idea about the credibility of this research, BUT they are located not far from my home. I'll visit their office - if not this week, then next week for sure.

I"ll let you know what I find out.

Jean

might be better if you break in under cover of darkness and take a few pictures of the notes of their research to post them on the interweb.

On the other hand you could book a meeting with the receptionist, whichever you feel most comfortable.

On a more serious note, this guy might be dubious but picking up on Reverett's post, he may have part of the jigsaw.

I await your pictures and feedback with interest.

Neil.