My MDS is suggesting I may have this, it is a varient of PD.

I have had a rest tremor (on one side) in my calf for 5 years with no further progression. No other symptoms other than Central Pain (abnormal neuro sensations) 2 months prior to the appearance of the tremor.

Does anyone have any knowledge of this type of PD?

From what I read, the symptoms stay at bay until the last third of the disease process and than progress rapidly to the advanced stage.

Glad for what is now, but very afraid of the future.

Any words would be greatly appreciated.

Thank You.

Your symptom is as close a description of what I have experienced over the last 20 months as I can find for a mild to moderate rest tremor that is mostly felt but not observed with 90% unilateral rest tremor in the left leg and arm (but not hand). Movement specialist neurologist believes I have mild ET, however another movement neurologist thinks enhanced physiological tremor. Medically unresponsive to Primidone and Propranalol. Just wondering how you are doing as it's hard to find much literature on similar conditions.

In college, I had a noticeable gait, and arms that never swung. Friends could spot me across campus as I was easy to pick me out of a crowd. So years later they would repeat that to my wife.

I also knew for my leg that would never remain still. Just who I was.

Last year I was given a Dx of Parkinson's Disease. So for 35 years I just continued on, received my degree in Engineering. Raised a family. Retirement is still some years off. I had told a close friend my biggest feat is cognitive issues, as I make little mistakes. He did laugh it off as he commented even if I have slowed down I'm still far ahead of everyone else.

The bottom line is diet, exercise, and getting a good nights sleep. That is the best medicine. If you can afford a personal trainer to make sure you work out, do it. That is all it takes.

Fellow at my Doctors office was Dx at age 50, and at 92 is still moving! I suspect his secret is long walks and remaining active.