Parkinson's Disease Tulip


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Old 06-24-2014, 04:54 AM #1
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Have a good friend that has PD and is having a terrible time sleeping .. any suggestions for meds . thanks
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Old 06-24-2014, 05:07 AM #2
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I would suggest checking the B12 level in the blood. Levels below 400pg/ml may be too low for people with neurological problems.

Melatonin, our sleep hormone is made from serotonin, using methylB12 as a cofactor.

PD patients can be low in serotonin too, and this may be a factor as well.

But let's see what the others here, think, too.
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Old 06-24-2014, 06:46 AM #3
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Have a good friend that has PD and is having a terrible time sleeping .. any suggestions for meds . thanks
Melatonin worked for me. Best sleep I've had in years since I started using it. Began with 3mg and now take 5mg about a half hour before going to sleep.
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Old 06-24-2014, 07:21 AM #4
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Melatonin worked for me. Best sleep I've had in years since I started using it. Began with 3mg and now take 5mg about a half hour before going to sleep.
tupelo3. any side affects at the beginning or now? i tried 3mg for a few days and i woke up drowsy so stopped. strangely, i sleep 6-7 hrs now with nothing but really haven't felt "rested" for years.
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Old 06-24-2014, 07:36 AM #5
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Have a good friend that has PD and is having a terrible time sleeping .. any suggestions for meds . thanks
has this person talked to their doctor? age, medications, physical health are all factors that can make this something a doctor should address imho and if nothing works then look elsewhere. i guess if this person is in perfect health, etc. then try anything but consider the risks of giving medical advice.

if this person can afford it they should see a sleep specialist, could be many things, not just pd, affecting their sleep. could be the bed/environment, sleep apnea, medications, urinary problems, etc. that may also have health consequences. if they don't find anything, then i guess it's trial and error. might be thought of as overkill but at least they'll have peace of mind that there's nothing serious going on. i've read that even changing pd med doseages may help so can be more complicated with pd.
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Old 06-24-2014, 09:05 AM #6
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tupelo3. any side affects at the beginning or now? i tried 3mg for a few days and i woke up drowsy so stopped. strangely, i sleep 6-7 hrs now with nothing but really haven't felt "rested" for years.
No side effects at all for me. I sleep great and wake up feeling refreshed.

I totally agree with the other points you made in your subsequent post about potential sleep issues.
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Old 06-24-2014, 03:01 PM #7
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I had the sleep test in the hospital that confirmed my REM sleep disorder. I have one .5mg of Clonazapam as a general rule and up to .75 if I'm in a really stressful situation. I am able to sleep 6-7 hours and generally feel rested. I don't have the horrible dreams to act out any more either, thank heavens.
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Old 06-24-2014, 07:52 PM #8
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Thumbs down Sleeping really well!

I was lucky to get two hours in a row and would wake up unable to move and panicking. I followed someone's advice on this board and got gelcaps from walgreens called Walsom. I take one of those and one dropper full of liquid cbd that I get from sootheen.com. I take those two meds plus my carb/levo 25/100 1 pill. I take all this at 10 pm and easily sleep until 6 am or even 8 am if everyone stays quiet.
The other thing I've done is to stop watching certain types of tv. No bloody vampire shows etc. I know that sounds strange but I did find myself having nasty dreams. It is much more soothing to watch travelogues or antiques roadshow.
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