Both a rational response and good therapy in my opinion. Might kick a little furniture around, too.

Seriously, though, there are far worse things to have. In 2000, I went to a neuro convinced that I had a brain tumor.

Do try to let the negative energy out in some way. That's one of the things that gotus into this exclusive club, anyway. In between these episodes, this is a good place to hang out. Good people and lots of support.

My diagnosis is about 1-1/2 years old, and I suspect that I should think it is tragic, but I don't - maybe the anti-depressants are interfering with my ability to feel strong emotion. Yet though my right hand shakes like a leaf, I have problems taking notes at a business meeting and transcribing a phone number can require the effort it took Melville to write "Moby ****", and there are days that I think I need to use my arms to lift my legs up the subway station steps, I still haven't gotten it in my head that I have a condition that will prevent me from doing what I plan to do with my life. I've gotten no worse since my diagnosis. I've said nothing at work. I wish I could scream, because I am under the distinct impression that my inability to do so is more of a sickness than my PD. Kuaila, other than the label put on it, if you're under good treatment, what is making you so angry/frustrated?

Hello, I suspect that my husband is about to be diagnosed with PD. He has an MRI this week and then we will go from there. I thought that he had frontotemporal dementia until he started having tremors in both hands and legs. He has difficulty standing in one place and balance is a concern. He can't sleep at night and has been clinically depressed for two years. Has anyone else had personality changes like noted in frontotemporal dementia but had it turn out to be PD?

Kuaila,

Recently an old high school friend wrote to me about my "being allowed to suffer for the instruction of us all." He is very religious and I know his intentions were good. But it led to my screaming (alone at home) that I had enough suffering in my life thank you and I wished it would end.

I believe sometimes you need to scream and should scream (in an appropriate place ) I have done this and then I go back to being as positive as I can be.

You are not alone. We are sorry you have joined the club that no one wanted to be a part of.

Good luck to you.

Jean

the neurologist still wants me on sinemet for two weeks for diagnostic purposes....then if it proves true ...on something lighter since my
symptoms are mild....anyway i had a horrible onset of meralgia paresthetica that pushed back my start date with sinemet since I don't want to mix it
with all the pain medication I'm on....the pain is receding somewhat with
exercise and epidurals

Hey Guy's - I'm a total newbie to everything and feel so overwhelmed. I'm a 40 year old male (if you couldn't tell from my avatar) and was diagnosed for a 2nd time with PD two weeks ago. They put me on mirapex 3 times a day (1 MG each) and Primidone. I've had tremors for a long time but first it was RLS, then Essential Tremors, and now finally Parkinson's. I've been for a DAT scan as well as numerous MRI's and I am sorry to ramble....

I guess, I am NOT ready to handle this. It's scary and now the tremors in my right hand are constant. I feel like everyone is staring at me, and my kid's are starting to see things they have never seen.

Thanks for having me here, I promise, I'll pull it together.

I was tested for everything under the sun within last 3 year's and we have ruled out everything. I can't tell if my doc thinks I am too young for a diagnosis, since symptoms aren't bad...mild for most part. Or if he thinks I am nuts. My dad has PD, his dad did to. I really would just like physical therapy prescribed for now. Wonder if getting a diagnosis worth it yet?

Hello, I am writing this in the hope someone could point me in the right direction.

My wife (49) has been experiencing intermittant at rest tremors in her left leg since dec 2009. Initially her primary care physician said this was possibly stress related etc. This month she experienced pain in her left ankle that would get better over night but become worse during the day. In addition to this her tremor became more pronounced. Her primary care physician recommended seeing a neurologist.

So... we made an appt with a neurologist at a neurology group suggested by her primary care physician. The neurologist performed various in office tests and prescribed blood work and an MRI and a follow up visit in 6 weeks. All of the tests came back normal and the MRI was clear with no tumors etc. The neurologist says he feels she has early stage Parkinson's and has not given us any information or recommendations other than we should see him in six weeks.

I've read countless websites articles etc about PD, but I'm at a loss as to what we should do for the next six weeks while we wait for the next appt.

jmeyer -- if your neurologist was not a Movement Disorder Specialist -- then find one and make an appointment asap. This is a neurologist who specializes in Parkinson's and Parkinson's-like illnesses. They are the best around.

for my initial diagnosis - the neurologist did the same thing - an mri to see if I had a brain tumor - when I did not - then the PD diagnosis.

But I switched to an MDS - she knows her stuff. It's best to see an expert.

Sorry to hear your wife joined the club no one wants to join....

Good luck.

Jean, thank you for the quick response.This has been quite a shock to us as my wife has always been healthy and very active. Being told matter of factly to come back in six weeks without any other guidance was also a shock. That was a week ago and I have been researching PD ever since. The amount of information available is staggering and it is difficult to sort through it all.

We will begin to look for an MDS in our area. We are in rural NW NJ but very close to NYC and other major hospitals in NJ.

Have you or anyone you know had any success with supplements for treating or reducing symptoms? My wife is quite active and is interested in going the "natural" route for as long as possible before going on any medication.