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07-04-2014, 06:44 PM | #1 | |||
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check out www.neurosciencemyths.com. She doesn't have to be afraid of levodopa. As a UM alum I was surprised to see Rich Rod. Are you related?
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07-04-2014, 07:04 PM | #2 | ||
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Grand Magnate
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Thanks Gerry! Will take a look at the link.
LOL Rich Rod... No I have not been on the site in a very long time since he was the coach so I need to change that Looking forward to football season starting up though. Go Blue! I'm not an alum but rather married a lifelong wolverine fan and fell in love with the team. Quote:
Last edited by watsonsh; 07-04-2014 at 07:20 PM. |
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07-04-2014, 07:12 PM | #3 | |||
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Oh Shelley Hello girl LOL
Sorry to see your mom has PD dx, my dad has had it for 15 yrs now. Just been having more issues this last year tho.. falling and confusion, some hallucinations.. I do the driving for them now. What kind of symptoms is your mom having?
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07-04-2014, 07:14 PM | #4 | |||
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Oh and how is your TOS stuff, did you get some of it sorted out?
(or you can post on TOS forum if you want to keep conditions separate..)
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07-04-2014, 07:19 PM | #5 | ||
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Grand Magnate
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Hiya Jo!!
So nice to reconnect with you! Nice to be back to this great community even if for not good reasons with my mom. Doing well myself, pretty sorted out. Will post more on TOS. |
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"Thanks for this!" says: | Jomar (07-04-2014) |
07-04-2014, 07:20 PM | #6 | |||
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For meds , everyone is so different, it is hard to say , mainly for dad we try some thing and see if it helps or has too many side effects..
He hasn't had any trouble with his PD meds.
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07-04-2014, 07:23 PM | #7 | ||
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Grand Magnate
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Gerry quick question, was reading the site you gave me. My mothers biggest fear is the nausea. So if she adds in things like mucuna, will it help limit the nausea? She just crumbles at the first sign of side effects from meds. Anything else that could help?
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07-04-2014, 07:30 PM | #8 | ||
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Grand Magnate
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Thanks Jo. She is supposed to start the meds tomorrow but is so sensitive and gets freaked out by side effects, especially nausea so once she read the pharmacy pamphlet she is freaking out a bit.
Symptom wise she has a tremor, stiffness, hunched over, no sense of smell...I think that is it, maybe more. |
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07-04-2014, 07:44 PM | #9 | |||
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Last year dad had some PT sessions for leg strength/core, but they always had to have a driver and he got tired of going/hassle of it. He is 82 now.
Many of his falls were after breakfast , if he sat too long at table and then tried to walk he had fainting type orthostatic hypotension .. but if mom got him moving as soon ash he was done eating he was oK.. the last few falls were due to the the freezing /PD shuffle feet & body moving at different times so down like a tree.. hit his head in the same place every time..only got a concussion 1 time tho..
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07-04-2014, 08:32 PM | #10 | ||
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Magnate
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SINEMET is the most widely prescribed and most effective drug for pd. It has been in use since I believe the 1970's and I wouldn't doubt over a million people use it and do very well in the first few years, many continue to function as they did before they were diagnosed because of sinemet and most dose up initially to 300mg or higher. Search this board for NAUSEA and you'll find very few posts about it. Everyone is different and there is a chance it might make your mother nauseous but the drug has a very short half life so it won't last long, maybe 1-2 hours and she can discuss alternatives with her doctor if nausea occurs. The drug companies have to warn you about every possible side affect to cover their liabilities, if you assumed you'd experience all the side affects in the aspirin package insert you wouldn't take aspirin.
Nausea and low blood pressure are 2 things to watch but I assume your mother has to take something and other parkinson's drugs also have side affects so you cope with side effects no matter what you take, your're putting neurotransmitters in your brain. . My opinion is don't mess with MUCANA and the HINZ protocol for your mother, do you want to be responsible for having your mother take MUCANA which is a legume, you have no guarantee for purity or % active ingredient regardless of what your're told, it's grown overseas in INDIA, MEXICO, maybe china. Others on this board obviously disagree, just my opinion. Keep in mind sinemet contains two drugs, levodopa which is a naturally occurring amino acid and cabidopa, which is similar in structure to levodopa and slows down the breakdown of levodopa in the peripheral tissues so more of it gets to the brain. it's the carbidopa which minimizes the nausea. So this is a simpler drug than some OTC drugs. buy a used copy of THE PARKINSON'S DISEASE TREATMENT BOOK by AHLSKOG, great reference book with very detailed prescribing guidelines for deciding which drugs to take, how much, how to deal with problems like nausea, and when to increase doses, switch drugs, add drugs. join a support group, contact local branch of APDA to find one. |
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"Thanks for this!" says: | Tupelo3 (07-04-2014) |
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