Are there guide lines set up on how to talk to your Doctor. How do I explain I'm feeling slow and cautiously? How do I explain I'm feeling like an elderly individual with no strength in my legs?

Why is there no standard for the arm and leg twirl, it is left up to the Dr to estimate your rigidity, why is it not measured controlled by a machine in LB FT or NM?

Pat

NFLPatriotsFan,

Welcome to the forum.

There are a number of structured, but still, ultimately, subjective tests, such as UPDRS, used for Parkinson's.

But, it surprised me too that there was not a collection of objective symptom measuring tools commonly available. As a first step, I wrote one: an online tap test. This can be found at:

http://www.parkinsonsmeasurement.org...eToSideTap.htm

or if you want to store your results on a database, go to:

http://www.parkinsonsmeasurement.org...sure/index.php

If you are interested in measurement, please get in touch.

It seems to me that many symptoms could be tested from home frequently, with the data being analysed using "big data" techniques.

John

If your doctors not a movement specialist you should seek one out or ask for a referral. I could help you locate one if needed.

Hasn't anyone developed an app for the phone yet?

Yes my programmer is a M.D.
I've made the mistake to see a R.N. and use my own M.D. (with the rep.).

It's been 12 long years with this this disease, and close too one year with a DBS. How ridge I am should be a exact science not up to individuals, M.D.s or others, bending over to lift my leg determining a rating of 0 - 4.

Maybe I should get off my *** and do something, thanks.

Part of the UNIFIED PARKINSON'S DISEASE RATING SCALE (UPDRS)
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Tremor at rest (head, upper and lower extremities)
0 = Absent.
1 = Slight and infrequently present.
2 = Mild in amplitude and persistent. Or moderate in amplitude, but only intermittently present.
3 = Moderate in amplitude and present most of the time.
4 = Marked in amplitude and present most of the time.
Action or Postural Tremor of hands
0 = Absent.
1 = Slight; present with action.
2 = Moderate in amplitude, present with action.
3 = Moderate in amplitude with posture holding as well as action.
4 = Marked in amplitude; interferes with feeding.
Rigidity (Judged on passive movement of major joints with patient relaxed in sitting position. Cogwheeling to be ignored.)
0 = Absent.
1 = Slight or detectable only when activated by mirror or other movements.
2 = Mild to moderate.
3 = Marked, but full range of motion easily achieved.
4 = Severe, range of motion achieved with difficulty.
Finger Taps (Patient taps thumb with index finger in rapid succession.)
0 = Normal.
1 = Mild slowing and/or reduction in amplitude.
2 = Moderately impaired. Definite and early fatiguing. May have occasional arrests in movement.
3 = Severely impaired. Frequent hesitation in initiating movements or arrests in ongoing movement.
4 = Can barely perform the task.
Hand Movements (Patient opens and closes hands in rapid succesion.) 0 = Normal.
1 = Mild slowing and/or reduction in amplitude.
2 = Moderately impaired. Definite and early fatiguing. May have occasional arrests in movement.
3 = Severely impaired. Frequent hesitation in initiating movements or arrests in ongoing movement.
4 = Can barely perform the task.
Rapid Alternating Movements of Hands (Pronation-supination movements of hands, vertically and horizontally, with as large an amplitude as possible, both hands simultaneously.)
0 = Normal.
1 = Mild slowing and/or reduction in amplitude.
2 = Moderately impaired. Definite and early fatiguing. May have occasional arrests in movement.
3 = Severely impaired. Frequent hesitation in initiating movements or arrests in ongoing movement.
4 = Can barely perform the task.
Leg Agility (Patient taps heel on the ground in rapid succession picking up entire leg. Amplitude should be at least 3 inches.)
0 = Normal.
1 = Mild slowing and/or reduction in amplitude.
2 = Moderately impaired. Definite and early fatiguing. May have occasional arrests in movement.
3 = Severely impaired. Frequent hesitation in initiating movements or arrests in ongoing movement.
4 = Can barely perform the task.
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