What we are looking at/for is not OTC. The amount of thiamine we are looking at taking would be almost impossible to take via pills, it would be the equivalent of something like tens of thousands of milligrams with all of that filler and capsules to have to contend with on top of the chore of swallowing everything.....several times a day, no less.

Add to this the fact that around 70% of PWP don't have the same (or any- Fox Foundation's study abstract wasn't clear to me on this) of the Prevatella bacteria in their gut which relate to thiamine, and I don't think it's too far of a stretch to say that perhaps taking oral thiamine might not be as beneficial (if at all) as taking it another way where it can bypass the compromised guts in the large majority of PWP.

Plus, I am not aware that we can get injectable thiamin in the US without a script

I know you mean well, ST, and appreciate your skepticism

The event is scheduled for next Tuesday March 03 2015. Stay tuned.

We look forward to hearing how things go!

I looked injectable thiamin up at the FDA.gov Orange Book site:

Only two companies show up and both are on the RX only page.

http://www.accessdata.fda.gov/script...ocs/tempai.cfm

Brothers, here is the summary of the appointment I had with the doctor.
First of all, he repeated to me that as soon as I *start the injections, the disease will stop immediately. He also said that all the symptoms will improve (for some people this will be more accentuated, for someone else a little less) but all respond. I have to continue to take the medicine, I will be able to reduce it forward. The product in question is called Benerva (in Italy), and he says to do two injections a week, forever, but he establishes the dosage after the neurological examination. If the patient misses a few injections, nothing happens, but if you skip too many the symptoms resurface. In fact, he says that this therapy will reverse the symptoms, not cure the cause, but the important thing is the final result. Another important thing is the total absence of side effects. I start tomorrow morning, I will keep you updated.

This small case-series report about thiamine/PD may be relevant to this discussion: http://www.ncbi.nlm.nih.gov/pubmed/23986125 .

It looks encouraging though three patients is not a big number.

Its authors do not claim, in sim00's words, that "as soon as I start the injections, the disease will stop immediately".

Sim00, thanks for your willingness to share your experience with the community. It sounds like a promising treatment. Best wishes to you, and please do keep us posted!

SIM00,
How did it go cousin? Wishing you the best.

I am confused here....the articles we are reading that have the amazing results (and the guy with MS who injected thiamine daily to keep his MS in remission) say the thiamine is a parenteral injection, but when I looked Benerva up, it appears it is a pill, is that correct?

I think we might see some modest benefit from thiamine in pill form, but don't think we can really hope to replicate the results seen in the articles posted in this thread without going the injection route.

For what it's worth, I am finding that the injectable thiamine will require not only a script, but also a compounding pharmacy to make it. So if you take low dose naltrexone, that is made by a compounding pharmacy and they may be willing to also mix up some injectable thiamine for you if your doctor will script it for you.

If you're having trouble finding the inject-able B1, here is one place that has is OTC.
http://www.canadadrugsuperstore.com/...roductID=74007