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03-25-2015, 04:00 PM | #1 | ||
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Junior Member
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Hi- I am a cc physician who was diagnosed 6 years ago at age 41--I have not had tremor or dyskinesia but certainly have significant off time-progressive over the years. I had relied predominantly on Stalevo---before i switched this weekend to Rytary I was taking C/L- 150 am -200 comtan and then C/L 100 with 100 Comptan at intervals--total 5 doses/day-not satisfied! My early experience with Rytary has been positive--despite switching "on a dime" and having a pretty bad viral infection- I am significantly better. I started 23.75/95 (4 capsules) TID--but noted that I was a bit "hyper" with this dose and my sleep was not as good. I changed to Rytary 23.75/95 x 4 iat 6-7 am--x3 approx. 11 am--x3 approx 2-3 pm and x2 6-7 pm---so I am taking the same toal dose but have been less wired in the early afternoon and have slept better----tel me what you think?---I obviously don't want to increase my risk of dyskinesias--experience is obviously limited but i would think that the lower exposure during the nightime might actually be better--any thoughts????
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03-26-2015, 09:40 AM | #2 | ||
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Magnate
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from my readings and from better relief from continuous delivery dudopa pump, less drug isn't the goal but keeping l-dopa brain levels constant. especially concerning dyskinesias. |
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03-28-2015, 08:16 AM | #3 | ||
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04-01-2015, 10:25 PM | #4 | ||
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Junior Member
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I've been on taking Rytary for 1 month. I take 3 capsules of 47.85/195 MGs 4 times/day ( take @ 0600, 1000, 1400 & 1800). It is working very well. I have almost no wearing-off like I did with regular C/L but seems very sensitive to protein. If I eat a high protein meal within less than 1 hr from taking the capsules, I suffer wearing-off much more than when I wait 1 hr after eating. Otherwise I'm very happy with Rytary!
Slumpy217 |
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"Thanks for this!" says: | Tupelo3 (04-02-2015) |
04-02-2015, 08:53 AM | #5 | ||
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Member
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Trying to compare things, wondering what strength of regular C/L you were taking before? Glad things are working nicely for you... eds195 |
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04-02-2015, 03:27 PM | #6 | ||
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Junior Member
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04-02-2015, 05:55 PM | #7 | ||
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Thanks Slumpy, again, glad it's working well.............
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04-04-2015, 11:57 AM | #8 | ||
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New Member
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Did you experience any dyskinesia on regular sinemet? On Rytary? I have been taking the same dose of Rytary as you are for two weeks but I experience considerable dyskinesia especially at the beginning of a dose. I tried taking only 2 per dose but that wasn't enough. I have also started getting severe cramps in my feet likely distonia. Have you experienced any of that? Thanks |
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04-14-2015, 11:07 PM | #9 | ||
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Junior Member
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Slumpy |
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04-16-2015, 02:26 PM | #10 | ||
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Junior Member
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I just got back from my appointment with my Neurologist. I have been on 3 caps of 48.75MG-195MG 3 times a day. My doctor was interested in my feed back because I was his 1st patient taking it. You can see my other posts to get a profile on me I won't repeat what was previously Posted.
I took the aforementioned dosage at 8AM-4PM-12PM ie. 8 hr intervals. The medication was effective for 5 1/2hrs so I would supplement it with 1 carb-lev 25-100 at the end of the 5 1/2 hr duration which got me thru to the next Rytary capsules. I only supplemented the 8AM Rytary and he 12PM Rytary. This worked reasonably well. After a month I found the Rytary caps had no affect on me while I was sleeping. I would get up several times during the nite to go to the bathroom and I had trouble making it to the bathroom. It was if I had no drug in me at all. So on my own I changed my intake for the next 15 days until I saw my Neuro again to 6AM 11:30AM and 5PM 5 1/2 hour intervals and I did not take anything else during the nite because it had no affect. I still had the problem of almost falling down each nite while traveling to the bathroom. I visited my Neuro today and he had no problem with my switching the intervals to 5 1/2 hrs but he was worried that i could fall down in the nite. He said you could take the Rytary 4 times a day at 5 1/2 intervals but that will no help your nite time problem that the Rytary does not work while you sleeping so he put me on a delayed carb/lev 50-200MG at bedtime to see if that would get me thru the nite. Oberservations and other side effects: I had more nausea especially at first while on Rytary. This has diminished but I still have some. Ryatary is affected by the food you eat more than Car/Lev. Meat drastically impacts Rytary's effectiveness. Other foods have some impact I won't specify because it is probably an individual thing. You should try to separate the pills and the food you eat by 1 hour. Overall I am pleased with the Ryatary it is a big improvement over taking Car/Lev every 2 hours. I hope there was some benefit to you from my observations this is a nasty disease and I wish the best for you. |
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