Now THAT was fun. Wonderfully accurate, lovely to laugh at all the others, what a take you have on most of them.....ah, hm, us. I find myself in several categories even though flighty old biddies are not actually listed.

silver bell like laughter....
birte

Wow - THAT was far, far OT. But fun.

In the light of morning the humor has paled, and I'm not even sure that your intention was to amuse. Good gracious how you do dislike us all. You have come to our party to tell us what a pitiful group of saps we all are. You see the friendship and caring here as pathetic and maudlin. Your assessment of us is a condemnation. The heart of this place has completely escaped you. But you're welcome anyway amongst us.

Wow

I would wonder at the terms you have used to denote what you believe to be personality traits of the members here.

This could be interesting if followed by precise data that you had collected.

In the 8 plus years I have been coming to this forum, first in one location and now here, I have seen the ravages not only of Parkinsons but of personal turmoil that has taken some from the brink of castastrophy to the heights of survival of both spirit and body. Truly remarkable human beings.

I would hate to see what you thought of me and my participation but I never assumes anyone with a 'real life' would be interested in little old me. Maybe they aren't and I am only assuming they would.

It is annoying to me to see this type of castigating of the members who you do not even know and make the assumptions of who or what they are on reading what is printed here.

This is by no means a factual representation of anyone. Just typing replies or posting some information seen is not who these people or myself are nor have been in what you refer to as 'real life'.


Wish I could see the interest in people or the humor in this but I see a much different person than Bemm sees. But then you allready would know what I see.

You do us all a disservice.

Last remark is like the one the kids use [ don't diss us man] lol

I too liked your post...perhaps it's because it's something like I would post myself. Of course by your presence and post here you become one of "us"!

I often glance at the long posts and do a cost/benefit analysis in terms of my time and barely or rarerly read them..they are just yada yada yada... sometimes.

Yes this forum is stacked with "information junkies" and most of the rest of us just selectivley read what catches our eye, and we get to know who we prefer or find credible or just entertain (provide what I call mental chewing gum). Occasionally we make a find that benefits our life...which reminds me, what ever became of Juan the fava bean snorter? Did he indeed cure himself, or is he dead/comatose out in the shed, from toxic inhalation?

Some people are just not happy unless they've got someone or something to challange. Unfortunatley thats what "outside the box" thinking attracts. Or as in my case, I'm sometimes so "outside the box" nobody wants to go there.
(outside the box in Siberia!)

This place reminds me of a large family (not always in a good way). For those of you who lived through the great crash of "06" you know how devastating the loss of our forum was, so yes we need/want to protect it.
Personaly I think there is room here for everyone, although I do not think all posts or posters are equal. We have all the types mentioned in "pdifos" list and much/many more.

For those of you who read my posts, you know I am more of a "cerebral" type - or a space cadet, if you prefer. This is where I come and listen to other peoples ideas, aspirations, madness, tears, frustrations, oral diarreha (excuse speling), etc, etc, etc. and in return post my own versions of all the above.

Ideas can stimulate some of the people some of the time, or none of the people some of the time or..... I'm just glad it's here whatever. Now what was the discussion topic again? Or has Ron left the building?

..........

looks like we are really getting OT now huh

so,
based on the fact that this is now a discussion about something completely different....

Ron, as the OP, would you like for us to split the off topic posts from this thread and create a couple of separate threads for them so that the original topic remains relatively intact here? Just let me know and it will be done. I would personally think pdinfo's post plus the (fully understandable!!) responses that followed would merge well onto the Over organized and Underutilized thread


Also, just to remind everyone that KD created a new thread here to discuss how we can help to resolve these issues that seem to periodically surface.
Perhaps any further discussion could take place there now instead of here.

We are trying to work with everyone here to have our interference minimal and the benefit to members who want intelligent discussion to be maximum.

thanks
Cheri

Cherie

There is no way possible for you even though you have the best of intentions to moderate what people post here and where they post it.

They will post wherever they want to be heard and while a nice organized set of rules and regulations looks good on paper they require a lot more to enforce. In this medium it is not possible.

I have suggested a way of doing it but I too am doubtfull that it will work even.

Ron may just post or someone else with a theory they would like to work on and receive no responses at all.

Who would like to post and have someone else decide if they warrant a place in the first posting. When push comes to shove maybe I wouldn't either.

So my best response is leave things as they are and let the members post as usual.

Some can use the ignore button and some like Ron can just print off the section they want and print it out or just save it in a document. When he has what he deems relevant he can post the whole thing and there we have what he wants, continuity.

As for moderation, well you know I don't support it as when moderators read a post and I go behind them I often wonder just what they were thinking when they chose the action they took.

Two people thik different and that's all it is.

But, many a post has been vacated because of the moderator removing a post that was the centrepice of the ones to follow and then it loses all of it's making sense.

You have to make up your minds and decide amongst yourselves what it is that you need.

I have been called names and had remarks made that someone else would have found it impossible to come back on again after it was posted. I have seen the mods leave it there for all to read and wondered why. But I accepted it because of it being at the time of posting exactly what someone was thinkilng and by posting it they wanted me to read it.

If it is an honest opinion even badly worded as to try to hurt it is an honest opinion and they deserve to say it. I don't have it agree lol but you know sometimes I do partially.

The following is personal to Jaye.

I really miss your postings and while we sometimes don't agree they are a value to us all. I think you have many many times been misunderstood by the mods and have been harshly judged but that is no reason not to post here. Sure it hurst and sometimes it is a pain to have to put your words through someone who you have no connection with either emotionally or intellectually and don't really connect with.

**Disclaimer added here by Chemar** This needs to be clarified--- the mods and admin here at NeuroTalk have never had to moderate anything written by Jaye and so this reference above is to other forums and NOT to NeuroTalk.

But they are the bosses and they under John own this site and we are the guests. True no guests, no site, so we have to abide by what they say and while one on one connection sometimes works most often it does not.

There is a comunication gap as they too are constrained by these rules and conditions imposed on them to enforce.

So no communication of a one to one type is available. They are on one side and we are on the other.

So stay around and let the chips fall where they may. We are all adults and I admit I have been in contact with the moderators over some problems but the contact was as cold as could be because of their rules and regulations they work under.

There is and they have, the moserators as well as John Grohol and John Lester for that matter no answer to the problem of communication on the net. I guess the only thilng is a period of waiting before the post is entered to see what is posted first but that is impossible so they too are in the dark as to what to do.

But you hve to admit this is and enticing and vexing way to communicate and while this is bad just think of someone with Als trying to communicate as well and after hours of single letters being punched by a faccial muscle or a twitch of an eyebrow and then being deleted by someone who has no knowledge of the effort and time spent on it is heartbreaking. That is why the Als forum is empty.

The hours apent along the path to utter paralysis and the only comuications left to them was Braintalk and to lose that was to lose their past altogether. Their is no hope for some to ever get it back as they have progressed too far in their disease.

So even with these problems there is a door that at the moment is only ajar so will the human being behind it come on in and sit and have a coffee as she once did with us all.

With hope and respect for all tryig to make this work and while at the same time not hiding behind masks and beautifull bodies and make believe worlds such as Second Life. Here we are real.

As Popeye says I am what I am and that's all that I am.

Kind of wish in a way I looked like Olive Oil but the resembalnce to Whimpy is closer lol how do you like that for truth lol

Just getting caught up.....PD Info...I don't see anything funny about your post. We are at a disadvantage as posters. .. You know more about our habits than we do about yours.

No one needs to apologize or feel that they do not have a life because they participate in an online support group. Anything else said would be a personal attack, which I am not permittted to do.

Why not take a hike?
paula

It seems as though this thread isn't going to turn back around. I'm not saying this is due to any one member. It just doesn't seem it's going to happen.

I'm going to close this thread.

The OP is free to post again the OT in a new thread. Others can post difficulties they have here in the forum as well as suggestions in the thread I started if they wish, etc.

Any posts that are flaming of another poster or group of posters is subject to removal.

I'm still hoping that we can discuss further ways to help communication in the forum in the thread I created while not singling out or flaming others.

Thanks,

KD