[john1947]

Hi,
Im 67 and pretty good shape until last october i started having myoclonic jerks.Some say here there not uncommon with PD.I get up aroud 5 am and try not to nap so Ill sleep better.I now take 2 25/100 every 4 to 5 hours.Early day i feel great unless I sit for awhile ,then I get stiff and lose momentum.Later after dinner Im losing ambition as my body wants rest.I wonder if I need more sinemet,more gives more jerks sometimes ,very unpredictable.I would like to take azilect but havnt been able to get a scripe for it,would that give me my vitality back like last summer.
Thanks for listening.
Any ideas
John

[billybiffboffo]

addlng a sinemet cr 25/100 at bedtime was a lifechanger for sleep with me. I was waking every 2 hours with severe hip pain, now I sleep from 9pm to 5am pretty regular. my mood at work is better with better sleep, but the "mild cognitive impairment" is still an issue.

[soccertese]

so your're saying your're ok physically but not "mentally" in the evening? not exactly sure what "Im losing ambition as my body wants rest" means. i experience mental fatigue in the early afternoon but am ok physically. like you, i'm only on carbidopa/levodopa. haven't found a solution for that problem, azilect didn't help me - neuro provided samples nor did amantadine.

have you tried comtan?

[TexasTom]

John,

Your routine pretty matches mine. How are your sleep habits?

I am not sleeping enough hours at night. Nighttime sinemet & comtan helped, and if I wake up middle of the night one 25/100 Sinemet to help release muscles (dystonia) helps.

Davis Phinney has a good video/presentation on sleep habits.

Exercise does help me. Today is first 100F day, with humidity heat index at 110. Not sure how long I'll ride the bike this afternoon.