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09-13-2015, 08:08 PM | #1 | ||
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Quote:
Forgot to mention I too had I think it was approx. the first 12 months post DBS without any antiparkinson meds. As the yrs have rolled by I have had the dystonia return though not nearly as uncomfortable and distressing as it was before and only in toes whereas before DBS it was also in my back, neck and shoulder blades. Thankfully that hasn't returned! Like I said in previous posting plain old Sinemet taken more frequently or with an increased dosage is in my case what resolves dystonia in my toes. |
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"Thanks for this!" says: | damon4309 (09-14-2015) |
09-14-2015, 07:49 AM | #2 | ||
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: )Madeitup TY.
I never had Dystonia prior to DBS. My sinemet has been reduced by over 50% in one year to 9 1/2 25/100 I inferred that you had Dystonia prior to DBS? |
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09-16-2015, 11:46 PM | #3 | ||
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I found this post on one of the Parkinson's forums sometime ago and saved it to my notes (don't recall know which forum was it):
" You can try several things. I would suggest trying only one at a time, and try it for at least three days to insure it is or is not working. First, try the supplement: magnesium (at least 250 mg twice a day). Second, try ice packs on the offending muscle group. Third, try taking gabapentin (350 mg by prescription). Fourth, try sinemet 25/100 mg by prescription. Fifth, try a TENS unit. All of these worked for me at different time. MM" I have occasionally bad cramps in my calves and bottom of my feet but didn't try any of these suggestions, yet. Last edited by Bogusia; 09-17-2015 at 08:31 AM. Reason: spelling |
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"Thanks for this!" says: | damon4309 (09-17-2015) |
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