I'm having awake but sedated DBS this Thursday 12/17/15, one side, then 2nd side 1/5/16. Scared silly, but absolutely need relief from terrible tremor & other symptoms (which is why I don't post here often, due to keyboard & computer difficulties). Any support, awake procedure experiences, outcomes, etc., welcomed! I posted this over on NPF's DBS Forum also.

I have been cleared for asleep DBS by the neurosurgical specialist here, but have declined [U]for now[U]!

I have opted for working on improving meds regimen at this time, but have wondered out loud to my wife about reconsidering DBS. My wife knows and admires the young female head of the surgical team here, and the two of them were talking just this afternoon at a holiday dinner/symposium put on by the PD Resource organization here, The neurosurgeon told my wife that she had just completed the first side of an asleep two-sided DBS after Sue (my spouse)told her that I was waffling on my earlier decision! The key members of the surgical team said when my work-up in September was completed that it would still be good for a year. Who knows? I'm thinking hard about it!

Robert

Wishing you all the best Peony! I'll send good thoughts your way on Thursday.
I just met with a neurosurgeon at UCSF last Weds regarding DBS. Where are you having your surgery? I hope you find much relief. I've seen it work absolute miracles for people - I hope it's a miracle for you!

Thanks so much, Anagirl. It's at Kaiser. Team seems very good.

May God be with you and guide the doctors as you go in for DBS. May you emerge with new hope, and control over the PD symptoms. Prayers for Peg this coming week too that as she is programmed her life will renew and be filled with health, new vigor and blessings

and I hope all goes well.

Neil.

I know how both of you feel, I'm down for DBS in Sheffield, UK. Wish there was an alternative but there really. All comments I read on various forums are positive. Though the spin on it from doctors nurses here is that mobility will improve but secondary effects may get worse because of the loss of levodopa with an increase in depression, weight and speech problems.

Does any feel this way?