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12-14-2016, 02:26 PM | #11 | |||
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It's a done deal! Stage III complete. What started as a nasty,rainy,Monday morning is now clear and Sunny, on the way home from Vandy. Already seeing and feeling good stuff happening to my body. The honeymoon effect is alive and well, and the Neuro surgeon said it's usually indicative of the results when I'm turned on . Don't want to curse myself but I have a glimmer of a sunny forecast now.😎Emotions running high!😥
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"Thanks for this!" says: | anagirl (12-14-2016), GerryW (12-15-2016), lab rat (12-20-2016), PamelaJune (12-15-2016), soccertese (12-14-2016), zanpar321 (12-15-2016) |
12-14-2016, 02:28 PM | #12 | ||
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Great news.....
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12-14-2016, 08:01 PM | #13 | ||
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He is absolutely right. Just don't make the mistake I made and
assume that everything will turn to roses on Day1 and stay that way for the rest of your life. They told me it would be a PROCESS and you know what, they were absolutely right. I just came back from my 1st. 'adjustment' this afternoon. They took the voltage up from 1.9 to 2.5 and I feel much better. I have learned, however, that what is important is not what I feel like at this particular moment but rather how I'm doing a month from now, 2 months from now, 6 months, and so on. |
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12-16-2016, 09:54 PM | #14 | |||
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Quote:
scottsuf.blogspot.com |
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"Thanks for this!" says: | eds195 (12-19-2016), soccertese (12-19-2016) |
12-19-2016, 07:58 PM | #15 | ||
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Quote:
I still take some meds but nothing like before. It's not all rosy though. I get some headaches and muscle cramps especially in my thighs. My speech is slurred sometimes. I got the rechargeable battery and if had to do it again I would consider the regular one. I am a bad procrastinator but so far I have kept it charged. The first week after the operation is the honeymoon where it feels like it is working but that goes away as time passes and you heal more. I was at the end of my rope before this and had no life whatsoever. This is not perfect yet but I would do it again. I already put on 20lbs of very needed weight. |
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12-20-2016, 08:03 AM | #16 | ||
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Junior Member
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Wow, I too had leads placed on 10/13. Currently at 2.5.
Speech is also a problem, although problems fluctuate somewhat. No muscle cramps that I can recall. I cry at the drop of a hat. I'm going to borrow Jim's disclaimer; Please consider the following information as my personal experience and in no way a recommendation or suggestion for others to go down this road. I am not a doctor. I am just a guy with PD. 1 capsule of Rytary 23.75/95 at 8 a.m., and 1 at bedtime. Yes, a total of 2. Currently experiencing approx. 85/90% tremor suppression, which I can live with. Especially on days when I'm sitting at home in pajamas. No more complications with Rytary and Alcohol After 9 am, I can eat as much as I want, as often as I want (5 LB. gain in 4 days). As far as I'm concerned, Dr.'s Kaplan, Fisher, and Griffith (Kansas City area) are Superstars. Key West tickets in hand for 1/7-1/12. Hopefully further symptom degradation won't be too severe or too rapid. Keep praying - |
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12-20-2016, 02:15 PM | #17 | ||
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Were you taking Rotary before the operation. I never tried it although I tried just about everything else the last 23 years. Before the operation I was frozen every three hours after taking meds. Now I can move but take a 50/200 er every four hours. I feel the old me creeping back in the difference being I can move all the time. I am beginning to wonder if the meds are still adversely effecting me.
Is there a website for people who have had DBS. My next adjustment is in mid January but I can raise or lower the voltage a little as needed. thanks |
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12-21-2016, 08:19 AM | #18 | ||
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Thankfully in Austin, TX we have a "DBS support group" that meets monthly. Went last week, small turn out due to Holidays but glad I went. Six weeks out after surgery. Honeymoon period has warn off, adjusting to the new me. Left hand ZERO tremor, right hand is very stable tremor at times. Dystonia no longer an issue. Have not had any foot dragging or freezing (!!!). I can button a dress shirt on a bad day. Currently at much reduced medication. My "on/off" transition is very mild (amazing). Long journey to go, so far all it good. I was feeling too good and returned to exercising too soon. Brain swelling is real, so take it easy for six to eight weeks after brain surgery.
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Born 1958. Diagnosed PD 2014. Meds Sept 2016: 5x daily: 2 - Sinemet 25/100 + 200mg Comtan; 50/200 ER Sinement (bedtime). Oct 2016 - DBS - bilateral GPi (PD & Dystonia). Still a work in progress. (Reduced meds to 4 - 25/100 & 50/200 ER Bedtime daily; but need six months to see how DBS/Meds play out) |
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12-22-2016, 12:03 AM | #19 | ||
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I try to get to the blog every other day. If you need anything else let me know. |
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12-24-2016, 02:44 PM | #20 | |||
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Thoughts? Comments? Merry Christmas from the hills of East Tennessee! |
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"Thanks for this!" says: | TryingMyBest (12-30-2016) |
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