Parkinson's Disease Tulip


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Old 12-26-2016, 02:47 PM #11
bluesking bluesking is offline
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Join Date: May 2012
Posts: 60
10 yr Member
bluesking bluesking is offline
Junior Member
 
Join Date: May 2012
Posts: 60
10 yr Member
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That's really interesting. I will ask the Doc during the 'adjustment' appt.
if I can DEFINITELY still see a chiropractor. I also couldn't believe what I
was hearing when I brought it up previously.

Once again, food seems to be the biggest challenge. I have gone back and
forth, desperate to find a combo that works. After the last change to 2.5,
I seemed OK, not great, taking the single 23.75 in the morning as well as
one at night. I'm still trying to get back to that after 'falling off the wagon'
last week and reverting to 5 (total) per day. But, last week I did have a
legitimate excuse, my mother was near death, with severe dementia. They
explained to me that they can program out much if not most of tremor, but
when it comes to high stress scenarios like the above, there is just so much
they can do. That makes sense to me. And even then I was at less than a 1/3 of the regimen before DBS. So, no, I will NEVER complain about that, or anything else that is part of the DBS experience, so far.

If somehow I can make the total of 2 work again, I really think it could be
a key for eliminating the overall food complications. My reasoning is one
capsule early, say 8 or 8:30, and one at bedtime, should allow me to eat
starting at 9 and on throughout the day, as long as DBS is adequately
doing it's thing. And by the time I take the 2nd capsule as I get ready for
bed, I will hopefully be asleep before the other complications return.

I will be ready to try 3, then 4, soon if the 2 'plan' fails me. NO complaints
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"Thanks for this!" says:
eds195 (12-26-2016)
 

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