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01-09-2017, 08:08 AM | #1 | ||
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Ah Crap! It happens.
Did they have to remove the brain leads? I just hope for the best, and a speedy recovery. On the humor side of life, I was trying to figure out why your kids went to University of Texas, when you live in Tennessee. Oh, what... I'll just blame Parkinson's for that one. Super cool your daughter is going back to school to work on Speech Pathology. I wish you the best.
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Born 1958. Diagnosed PD 2014. Meds Sept 2016: 5x daily: 2 - Sinemet 25/100 + 200mg Comtan; 50/200 ER Sinement (bedtime). Oct 2016 - DBS - bilateral GPi (PD & Dystonia). Still a work in progress. (Reduced meds to 4 - 25/100 & 50/200 ER Bedtime daily; but need six months to see how DBS/Meds play out) |
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"Thanks for this!" says: | ScottSuff (01-09-2017) |
01-09-2017, 01:41 PM | #2 | ||
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Scott,
Sorry about the setback. Keep leaning on your great family, they will help you get through this. You are a strong, retired AF officer and will clear this hurdle. Good thoughts continuing your way. Eric |
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01-10-2017, 11:09 PM | #3 | |||
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Junior Member
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Quote:
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"Thanks for this!" says: | eds195 (01-11-2017), soccertese (01-11-2017) |
01-12-2017, 01:15 PM | #4 | ||
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Junior Member
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Hi Scott - Just returned from Key West yesterday, very sorry to hear about the complications, please let us know when you start to feel better.
I do know one thing, the fact that you're a Vet and I'm not confirms that you'll be just fine, just a matter of time. Hang in there, buddy, I keep finding evidence of bizarre health issues that are cured somehow. And, I actually hate to broach the following topic because I know many people will roll their eyes or burst out laughing. But, I don't know of another online community that will offer and intelligent response I've had ED since I was 40, and I turn 59 next month. Since DBS, I have had no issues in that Dept. Has anyone else had a similar experience?! David |
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"Thanks for this!" says: | ScottSuff (01-14-2017), soccertese (01-12-2017) |
01-12-2017, 01:37 PM | #5 | ||
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Magnate
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Quote:
are you kidding? if not, you may have a "gold mine" there. just need to find a bioengineer who can wire one up without the need for brain surgery, find some investors ... |
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01-15-2017, 03:52 PM | #6 | ||
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Junior Member
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Well, I have to say, sounds like so much BS to me, too.
There has to be some kind of reference in the medical annals, I just can't find one. And yes, it didn't make sense to me to have that problem at the tender young (LOL) age of 40, either, just like it doesn't make sense that DBS would cure it. And just when you thought my DBS 'experience' couldn't get ANY strange, consider the fact that I had chronic skin diseases, with Rosecesia (red scaly skin- I know that isn't the correct spelling) that has absolutely disappeared since Oct. 16. However, for this particular problem, I recall running across something that indicated this could be a early sign of PD, which does make sense in my particular situation. Some others, such as increased amounts of body hair in undesirable locations that are lessened considerably after DBS may actually get me banned from the board (LOL) but guys and gals, I couldn't make this stuff if I tried....@! One thing that I do know. This may not be a cure. But nevertheless, it is a miracle. No one will ever convince me otherwise. |
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"Thanks for this!" says: | soccertese (01-16-2017) |
01-15-2017, 11:49 PM | #7 | |||
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Junior Member
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Blog Update
Scottsuf.blogspot.com |
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"Thanks for this!" says: | eds195 (01-16-2017), soccertese (01-16-2017) |
01-17-2017, 05:48 AM | #8 | ||
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Junior Member
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Scott - I saw your blog for the 1st time yesterday. Apparently I
repeatedly hosed my URL entry attempts. I think I may have a suggestion or two when they get everything straightened out for 'round 2.' I can't remember exactly what they set the initial voltage to from the factory. For purposes of discussion, let's say it's 1.5. In my case, the value is currently at 3.2. Scott, if you can convince them to let you leave the hospital with an adequate 'ceiling' meaning that you can 'bump' up the settings yourself, instead of waiting for your next 'adjustment,' as I was forced to do, you can save yourself much grief. For example, based on their advice, and personal trial and error, if I had been able to do so, I would have increased the setting by 2.0 each day, until sensing significant relief. I think you are already aware that any such sensation is short-lived, or at least it was for me. It usually 'healed' in 2 weeks or so, leaving me quite miserable for the next 2 weeks, until my next appt. David |
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