Originally Posted by soccertese

you can try the patch, i've read on this board and others that it works for some and not for others and it can be a hassle placing it on a different patch of skin everyday, agonoist side affects like OCD, nausea, dizziness. if it works well then you can use it for as long as it works. i've read that brand name requip-xl works well too. cost could be a factor if your insco won't cover whole amount.

you may not qualify for a DBS. Your MDS wouldn't recommend it though if he/she didn't think you would qualify. it is the last resort along with duodopa intestinal gel so you have to assume eventually you will need one or the other. if you wait until you absolutely need a DBS you may not qualify for one so you have to make that part of your decision framework. also, will you have enough support before,during and after the operation? if you talk to someone where DBS works well they tell you they waited too long. if your think you'll still qualify physically and mentally for a DBS in a few years, then there is possibly a benefit to delay since there might be a technology improvement during the waiting time.

write out all your questions and concerns and email to your mds before the meeting. get a book on DBS, many on AMAZON.

Originally Posted by proudest_mama

You guys are the best! I'll talk to my neurologist about psychosis as well. Thanks for the information. I would have never thought about it, and I'm sure others wouldn't have as well. You've helped a lot of people.