I'll look into the soleray product..

Thanks,

Mike

Mike,
here is a dietary supplement called DOPATONE from Apex Energetics. This formula has
Vit B6,
Selenium,
phenylalanine
phenylethylamine
N-acetyl tyrosine
N acetyl cysterine
Blueberry extract
alpha lipoic acid
ANd
MUCUNA PRURIENS extract 300mg!

This was recommended by my acupuncturist. I havent started on it yet. Supposed to be of good quality and has been used by a few PWPs, I am trying to get their opinion on its efficacy.

girija

Thanks Girija! 1300 mg sounds like a lot. Most people have been using it as a powder. I will look into it.

Mike

Mike,
I made a mistake in typing, you are right 1300 mg is a lot! its 300mg, thanks for pointing it out!
I am correcting it in my earlier post

girija

I have taken Himalya Brand Mucuna 2 caps = 500mg. usually one time a day. It seems to help my internal tremors and feel good.It has been several months and still seems effective.
My Neuro wants me to go on Azilect, as I am early stages, and have not used RX yet. I have concerns as I have liver lesions and lung nodules, both show up in adverse effects, so will continue with Mucuna and research Azilect. I also take Co Q 10,fish oils and other supplements.
I saw somewherre not to take Mucuna with milk.
Joyce

Actually, I think that Ayurvedic use of MP is mixed with milk. As for that liver, you might want to research silymarin. Has a well researched protective action on both liver and kidneys, a high safety profile, and it calms down the microglia in the brain.

Hello,
You are correct, websites show use of Mucuna with milk, so will not delay my dose till after my Latte .
My concern with Azilect is in the multitude of side efects it states can increase tumor size , and my nodules have been stable for 3 yrs. Is the effect of Azilect worth the risk? will the drug free my right leg,give me more energy. I will go to the Azilect thread also.
I am early stage Pd and 73 so wonder if age is relevant to how body reacts to Pd, I have always walked a lot and worked out. I also have Atrial fib,which is controlled with meds.
How high a dose are you taking of CoQ10?
Thanks for your input, joyce

Hey Mike.

Within my experience of neurologists, I personally wouldn't be overly concerned with the remark; it tends to be a "duck-and-cover" answer when one raises a topic about which they know little or nothing (at best). PD is highly individualized so a regimen copy that works for you may not work as well or differently for someone else and vice-versa.

My first scrip is for Amantadine, 100mg 3x per day. I'm still on it, approx 9 months in because like you, I've been resisting pharma product as much as possible. I have yet to determine what to do about that when it's efficacy wanes, but that's down the road for a bit yet.

You might want to do some research on GSH (l-Glutathione). I've had wonderful success with it as an IV-push 2x per week (the good doctor showed my partner how to administer it so we do the IV at home – it's not rocket science and saves us a whack of cash).

Be advised that if you're up here in Canada, your regular GP or your neurologist will not be able to write you a scrip but any naturopath can. Asking your neuro about it will drive her into a frenzy; at least, it does so here anyway.

Also, IV tends to to be way more effective than oral ingestion.

I'd prefer not to pollute this thread, so if you want more info I'd be happy to reply through an off-site mail address.

As to the quality of MP through the web... I read this thread thoroughly and decided to purchase mine through Amazon.com but it has yet to arrive. I'll be sure to post again when it does, though.

John

Thanks john,

Hate needles , so don't think the IV is for me. I also just ordered MP on the web after researching one particular company. It is 200 mg tablets at 15% l-dopa. Will start with one tab per day to see how I react and go from there. Concerned after reading that mp might increase dystonias which is my main complaint at the moment. My own little human clinical trial will begin shortly! As an aside, mentioned my intentions to my neuro and he recommended taking l-dopa/c-dopa. Maybe I will be doing myself more harm than good, but we'll see.

Mike

Good luck and keep posting!
Girija[


QUOTE=svision40;488516]Thanks john,

Hate needles , so don't think the IV is for me. I also just ordered MP on the web after researching one particular company. It is 200 mg tablets at 15% l-dopa. Will start with one tab per day to see how I react and go from there. Concerned after reading that mp might increase dystonias which is my main complaint at the moment. My own little human clinical trial will begin shortly! As an aside, mentioned my intentions to my neuro and he recommended taking l-dopa/c-dopa. Maybe I will be doing myself more harm than good, but we'll see.

Mike[/QUOTE]