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In Remembrance
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I picture it as a game to play with my neuro next visit, but it is really intended to be a collection of observed symptoms, effects, etc that just don't fit the simplistic "dead cells, low dopamine, tough luck" theory. I'll start with one that got me thnking. If you have another, add it in.
When I am freezing and my feet are epoxied to the floor, I can break a foot loose by simply touching the top of my (bare) foot with the tip of a lightweight walking stick. I can achieve a similar effect by pivoting the foot to touch the heels together. Each "trick" is good for a single step and must be repeated. As best I can tell, this has nothing to do with dopamine or the substantia nigra. My guess is that there is a sensory phenomenon involved, perhaps a result of neuropathy. Anyone else have one?
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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