tonight down the pub (testing the alcohol theory), i was invited to join the darts team and i remain unbeatable at pool.

I cannot however carry a cup of coffee between rooms.

Resting tremor vs deliberate movement, how strange to explain PD to anyone.

I guess we all end up in an ugly place though, who knows what may befall us on the road to that place so no need to worry.

Take care,
Neil.

All brain diseases are weird. I have a friend who is the same age as me (35) cough, and had an anyurism, brain bleed and seizure. She had to relearn everything from scratch, how to eat, walk - her husband said she held her spoon like a chimpanzee.

But she never got her short term memory back. she can't drink, so the few times I have gone out with them, she is the perfect designated driver, as long as you keep reminding her where to go. it's bizarre. We had a long conversation about brain illnesses making you lose your inhibitions about some things (in other words "who cares"). Then she got up and went to the restroom and came back kind of dancing a little to the music, saying, "you know, I think we lose our inhibitions with this brain damage."

and so it goes.....and comes.....and goes.....with the brain
paula

I have heard many say it's a weird malady we have -
however all illness is weird/
their is a line at the beginning of the movie -GATTACA
who can straighten what God has made crooked?
perspective -

it can go two ways - much much worse/weirder -
for which I am still thankful while crawling on the floor -

or we can become well - it's a matter of faith...
healing of the mind / rather than the body?
all I realize is no one can live in this mud body forever...

somedays I feel overwhelmed
yet then other days I have peace, and I
trust -and I am happy and in that moment
I appreciate my now / and realize what I took for granted in my youth...

I have gleaned wisdom from the symptomology...
I do not like Mr. Parkinson's, but so far I have not been able to shake him off... lol ...

I have heard and read of Parkies get up out of their wheelchairs and save a drowning child, etc... and then return to the wheelchair disabled...
what you call weird - some call miraculous

:cheers!:

...very interesting response to this thread...and profound in that you were able to extract and savor the good while it's present...that you are happy "in the moment"...the "now". Once again, attitude makes all the difference.

I noted, too, that you referred to PD as "Mr. Parkinson" just as Doreen and I do...and yes...Doreen, too, has difficulty shaking him off!!!. He's a veritable nuisance...and oh, so moody!

I especially liked your conclusion..."what you call weird...some call miraculous".

Thank you for a really very nice...and even uplifting post.

Therese

I'll second that Therese, Tena can be like a breath of fresh air.


paula

Neil, I agree it is a weird disease.

I can't hold a cup of anything without sloshing it all over,

BUT I can take up a petite needle (about 2 inches long) and do fine needlework for hours (my current project...next project/stumpwork.

It is a concentration thing.

aftermath
I don't think it sounds weird at all that you can ace those at the local pub, but can't carry a cup of water from one room into the next. I am so fortunate. I don't tremor - just a teeny, tiny quiver is all.

And I don't go "off" very often, but when I do - I hate it.. I can't walk or use my hands, I slur my words, and I cannot think well. When I am "on," however; except for my slight dykinesia (bobble head), one could never know I had PD.

I can do beautiful artwork when off or on. However, the styles compared from both the off and on times are very different. I usually paint on canvas with acrylics, but recently have been drawing portraits from photographs. My medium is pastels (chalk). Not bragging, but the look is good.

Are there other things any of you can do as well when off, or do you have super powers when on??
Curious to know.
Peggy

I play classical guitar, but walk with a cane. My pinky finger gives me trouble reaching as far as it should and curls under my ring finger when I stop, but I still can play. I play at church and coffee shops and an occasional wedding job, besides giving lessons. In the summer I will play at a summer street music series.