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04-19-2008, 12:38 AM | #31 | |||
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I feel so bad even making that suggestion. I like the tulip very much and wouldn't want to change it. Thank you for creating such a nice symbol for the people with parkinsons.
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04-19-2008, 02:22 AM | #32 | |||
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Magnate
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Okay, I have the pin. I have the bag. I have the bumper sticker.
NOW I want it in Magnet form for my car!!
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You're alive. Do something. The directive in life, the moral imperative was so uncomplicated. It could be expressed in single words, not complete sentences. It sounded like this: Look. Listen. Choose. Act. ~~Barbara Hall I long to accomplish a great and noble tasks, but it is my chief duty to accomplish humble tasks as though they were great and noble. The world is moved along, not only by the mighty shoves of its heroes, but also by the aggregate of the tiny pushes of each honest worker. ~~Helen Keller |
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04-19-2008, 08:19 AM | #33 | |||
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Senior Member
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Quote:
When I get back from my trip, I'll send you one! Jean
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Jean B This isn't the life I wished for, but it is the life I have. So I'm doing my best. |
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05-03-2008, 10:45 AM | #34 | ||
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New Member
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To all who have posted: Thank you, thank you, thank you.
Jean & I are living our dream. Karen PD Tulip Designer |
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05-03-2008, 08:39 PM | #35 | |||
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Senior Member
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Youtube short with voiceover -about pd awareness and the tulip
http://www.youtube.com/watch?v=TkGRzsxnUzQ Jean B
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Jean B This isn't the life I wished for, but it is the life I have. So I'm doing my best. |
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"Thanks for this!" says: | Curious (05-15-2008) |
05-04-2008, 11:01 AM | #36 | ||
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Member
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Karen,
Thanks for your gift to people with Parkinson's. What I've dubbed the "People's Tulip" is not just a symbol, but the catalyst for change long overdue. We will take down the walls that divide the PD community and combine our efforts to find a CURE in our lifetimes. Sheryl |
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"Thanks for this!" says: | jeanb (05-04-2008) |
05-04-2008, 02:34 PM | #37 | |||
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Senior Member
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I think the idea of a single emblem for Parkinson's is a great idea; I applaud Jean, Sheryl, and Karen for their great efforts in pushing this concept forward and bringing awareness to the fractured nature of the national PD establishment - a division that works against the best interest of the patient.
But it is not enough. We must take care that the unifying symbol of the tulip does not come to mean symbolic unity only. We must keep working to bring collaboration among all the organizations on a real level; cooperation in research, education, and advocacy; a dedication to eliminate duplicated efforts, to be aware of what is getting done for patients and what is falling between the cracks. I attended a meeting of the People with Parkinson's Advisory Council sponsored by the Parkinson's Disease Foundation last week in NYC. CEO Robin Elliott is acutely aware of the divisions (we don't let him forget - I am gratified that virtually all of the patients on the committee see organizational non-cooperation and duplication to be an underlying, ongoing, and deeply troubling challenge that is raised at every opportunity), and there are hopeful new program initiatives on the horizon that bode well for better collaboration. It still remains a tough road and a hard sell. The fact remains that the PD organization world is mainly one of competition not cooperation. Let's continue to be vigilant, active, and outspoken (MJFF CEO Katie Hood's "agitators and idealists") advocates for real unity - we can't let the powers that be think that putting the same symbol on all of their literature means the same thing as actually working together on behalf of all PD patients. Symbolism can be powerful. Hopefully, this effort will get them thinking.
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Carey “Cautious, careful people, always casting about to preserve their reputation and social standing, never can bring about a reform. Those who are really in earnest must be willing to be anything or nothing in the world’s estimation, and publicly and privately, in season and out, avow their sympathy with despised and persecuted ideas and their advocates, and bear the consequences.” — Susan B. Anthony Last edited by indigogo; 05-04-2008 at 07:21 PM. |
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05-08-2008, 11:34 AM | #38 | |||
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Senior Member
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Carey -- Well stated! I agree wholeheartedly.
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Jean B This isn't the life I wished for, but it is the life I have. So I'm doing my best. |
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05-08-2008, 05:32 PM | #39 | ||
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Junior Member
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"Thanks for this!" says: | Curious (05-15-2008) |
05-14-2008, 09:22 PM | #40 | |||
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Senior Member
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Local NPF & local APDA chapters around the U.S. are purchasing tulip pins and are using the tulip!
Jean
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Jean B This isn't the life I wished for, but it is the life I have. So I'm doing my best. |
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"Thanks for this!" says: | Curious (05-15-2008) |
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