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03-25-2008, 09:51 AM | #1 | |||
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i am going to try to become an advocate for the disabled in my county. probably working within the judicial system. without going into detail, i will just say that there is a huge lack of concern for the well being of the disabled when legal matters happen within the courts.
if you suddenly were left alone, what would you do? what services would you require? ideas please...
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I have a post-encephalitic neurological disorder, but it does NOT have me! |
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03-25-2008, 10:20 AM | #2 | |||
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that you have decided to take up this task? Although I don't have any specific ideas for resources along the lines of what you ask, I'm sure there is plenty of need for it.
You are a real "candle lighter"! Go, girl ! Robert |
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03-25-2008, 02:47 PM | #3 | |||
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In Remembrance
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Ideally, it would require a single telephone call. I would be both distraught and confused and not up to dealing with multiple sources. So, a central coordinating office would be my first priority. From there, everything from government agencies to charities to church groups to individual volunteers could be dispatched.
And since the Net has become such a lifeline, a geek brigade would be a high priority. If my PC went up in flames it would be great to have a used replacement waiting along with a local website. And maybe the local cable company could be persuaded to donate a connection - tax deductible, of course.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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03-25-2008, 04:47 PM | #4 | ||
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In Remembrance
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Harley I've had a few calls from people who know of pwp who have no place to go - they literally need shelter. When i started making calls, all I could find were shelters for the homeless, but they needed so much more. One had a child with her.
very sad, paula
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paula "Time is not neutral for those who have pd or for those who will get it." |
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03-25-2008, 08:50 PM | #5 | |||
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paula, there are alot of independent living centers... BUT! they need to be low income, and usually there is a waiting list. some states offer respite care, or temporary lodging in an assisted living place
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I have a post-encephalitic neurological disorder, but it does NOT have me! |
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