Fiona,

Thanks for your post. What else can we do but shoulder on even though we are sick and tired of having pd, talking about pd, thinking about pd. We are trying desperately to help find a commonality that will help prevent or cure one of the most insidious medical conditions. I understand everything you said in your post, I am like you all over the map with small but gradual improvement. It is nice to have some company on the journey. Glad to hear from you.

Hey Bonnie,

Look what I found for you - and Rosebud - and Max and FIona and me and everyone...

http://www.sotaicanada.com/index.php?History

Is a trip to Vancouver doable for you? I would be there in a heartbeat...and might even make it from the east coast - especially if you check it out and get results - which I absolutely believe you will. Please look into it for all of us!

and yes, i think that was too much mucuna. I've been taking it and /or sinemet for only 3 years and am becoming increasingly intolerant to it. I now take 3/4 Sinemet 10/100 and 1.5 grams mucuna powder - and it keeps me ok for about 2 1/2 hours - before i pay with the dysky withdrawal stuff...which google told me was denervation between the substantia nigra and the striatum - ie DRUG BURNOUT!

the sun is shinning , gotta go for now... Ibby

Ibby,

Holy jumping junipers, (OK I'm being goofy) I think this is where I fit. Did you notice the price under business info? Treatment 1st time 10,000 E (is that those Euro dollars again which is I think over $1.50 our dollar, could be close to $2.00). After 5,000. Lesson 15,000 (240 minutes) (Basic). Rosebud you are over there, have you heard of this? Feel like checking it out price wise? Those big numbers........I'm not ready to sell the farm. Thanks Ibby, I printed off everything from the site to go over it. I feel this is the direction that I am headed for. We should be able to get the same philosophy for free and similar treatment through our medical system. Can't say much more until I get the facts? Thanks again Ibby for being on it!

I didn't see that business info. Under FAQ it says sessions are $70....and there are package deals that make it $50. Standard charge for 'bodywork.' Doable. And you get to keep the farm!

Thanks, Ib - loving it. Will respond in greater detail later.....

You are right. This is the blend

It says each tablet contains 250 mg high quality (spray dried) standardized extract N.L.T. (Not less than) 40% Aldopa and 500 mg powder of Mucuna seed. I think I did order the wrong stuff! What is that add Aldopa doing in there? Yikes!

Thanks Ibby, how I missed that part? Duh. Anyway, that is very doable. I'll try and get an appointment. It's a little hard right now sitting for any length of time and walking, but I am having more on time now so I am willing to put up with a little more discomfort as long as a get a good nights sleep.

Thanks again, Bonnie

Bonnie, think of it this way, if the extract of mucuna part of it is 250 mgs that are 40% L-dopa (which is natural - mucuna does contain dopamine, which is part of how it works), then you have about 100-odd mgs. of L-dopa there - which is the amount that would be in one 25/100 Sinemet. But then if you have all that other 500 mgs of mucuna seed - which I have no idea how to evaluate - then there's probably more than that. It's not that mucuna doesn't have dopamine - it just seems to be delivered in a network or form of some kind - supported by other antioxidants or something else, that apparently is not toxic or not so toxic, and probably has something else besides that is actually neuroprotective...anyway, that's the hypothesis as I've been able to find out so far. But dopamine might still not be for you, I don't know....