Parkinson's Disease Tulip


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Old 07-09-2008, 03:39 PM #11
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I had DBS 7 years ago, and have had complications....speech problems...memory problems....lead replaced due to a short.....would I do it again....like Charlie said......in a HEARTBEAT!!!
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Old 07-10-2008, 01:11 AM #12
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Question Pegleg..

Quote:
Originally Posted by pegleg View Post
OK, let's take off the boxing gloves and throw in our towels. It doesn't solve anything and might even run needy readers elsewhere.

Gayle, I have to defend Charlie a bit (if I may). You should have known him BDBS (Before DBS). He was pitiful - freezing quite often, couldn't take care of even simple hygenic needs without help - just a mess! DBS for him was a Godsend.

But Charlie, in Gayle's defense - you do sometimes overkill on trying to sell people on DBS (and no - he doesn't get a kickback). I completely understand why. However, we need to cut the fluff here and tell people what the down and dirty might be: I have known several who went thru hell (excuse moi) with infection or wires messed up with DBS, and voices are often affected. I chose to take cell transplantation because I just didn't want hardware in my head.

Everybody has the right to say what they want here (with a litte moderating by John (I think that's his name), but for God's sake - don't fight about it! Charlie, I appreciate all the people you have helped direct to a choice of treatment that did well for you. And Gayle, I understand your remarks.

And none of this was any of my business, but it's the "teacher/principal" iin me to intervene and try to make everything flow smoothly.

Hugs to both of you. Heck, let's all hug! lol



Peggy
Hey Pegleg,
I noticed in your post that you say that you chose cell transplant vs DBS because you didn't want the hardware. What type of cell transplant did you have? Where was it done? How long ago? How are you doing? Thanks.
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Old 07-11-2008, 02:00 PM #13
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Hey Pegleg,
I noticed in your post that you say that you chose cell transplant vs DBS because you didn't want the hardware. What type of cell transplant did you have? Where was it done? How long ago? How are you doing? Thanks.

Jim;
Peggy had the Titan Spheramine treatment and it worked for her!

Charlie
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Old 07-11-2008, 10:21 PM #14
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Our bodies produce dopamine naturally in the retina, adrenal glands, and brain. I have retinal cells from a donated eye. The study was called Spheramine, and I was in Phase I.
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