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08-21-2008, 10:30 PM | #1 | ||
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Does mucuna cause dyskinesia?
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08-22-2008, 01:58 AM | #2 | |||
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Junior Member
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Mucuna and Dyskinesia
In my experience with taking mucuna for the past two years is yes, you can experience dyskinesia, if you take to much. My symptoms are: To much body movement, especially when I'm trying to talk. I end up talking to fast. I get antsy and a bit hyper. I even find myself passing people when I'm walking. This usually happens, if I don't wait long enough for the last dose to wear off (minimum 2 hours) or if I've added a bit more because I've thought that I've didn't take enough. Mucuna isn't perfect: It sometimes vary from batch to batch, but like sinemet; What you eat, how active you are, stress, etc. all effects the effectiveness of mucuna or pd meds. Overall I'm still pleased using mucuna. But I'm still trying to keep my herbs/meds to a minimum and not take anything in the evening till morning (sometimes I can go 16 hours totally unmedicated). I believe it's important to give your body a break off herbs/meds. I truely believe that we are capable to recover from PD. Only if we body a chance. Max |
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08-22-2008, 02:34 PM | #3 | |||
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dyskinesia is a very odd thing....I don't think anyone really understands it. It is a form of Irritation to our systems, brought on by levodopa...but what is it about the levodopa that causes us to start to move so bizzaarly. It seems to effect our muscles, tendons and it's as if some evil puppeteer has control of our strings. I experience less of it if I eat a lot of veg and carbs in small increments as a compliment to my medication. I've also found that sometimes we just need a good drink of water. Does that wash out some of the whatever it is thats irritating our system. Is it a byproduct of the use of levodopa that our bodies get overloaded with. There are way more questions than answers.
Because mucuna is a naturally occurring form of levodopa, it's only logical to assume that it can create dyskinesia but the why, and how are just speculation. because its in its naturally occcuring form with no additives (not Zandopa) it should be less likely to cause dyskinesia. I'm just dabbling in mucuna for the moment. The one big plus so faris I sleep really well at night. However it doesn't seem to help much with my tremor, my most stubborn symptom.
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08-22-2008, 05:06 PM | #4 | |||
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In Remembrance
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When I first started with mucuna, just a little too much set me to wiggling. After a few weeks I realized that the DK had disappeared. Over the last couple of weeks, I have been phasing out the mucuna as part of my testing. I restarted it at a low dose yesterday and the DK was back. Just more data for the heap.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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09-02-2008, 06:02 PM | #5 | |||
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Rick, I feel like a lab rat, always testing to get off all drugs. After using Zandopa for approx. two months I found when I was getting close to the next dose time my body would start getting anxious, eventually it shot my nervous system to hell, what I have left of one, that is. I am ramping down 1/3 every 3 days. I was going to just stop taking it period, cold turkey, but I know that was stupid thinking. It is when you put a drug close to your mouth and your brain is telling you in some way NO I figure there is a reason for this. For me Zandopa proved to be highly addictive and very dangerous. It caused me to re-experience some former pd symptoms, I lost my confidence and more strength. I need to exercise to try and prevent the necessity of having to have neck and back surgery. I am seriously de-conditioned and weak as a kitten. I'll figure something out.
Bonnie
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"Trust your nervous system" - Timothy Leary |
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09-02-2008, 09:18 PM | #6 | |||
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In Remembrance
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dear one,
I am sorry you feel so weak, you are in my thoughts -sending you light, and strength... tena Quote:
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with much love, lou_lou . . by . , on Flickr pd documentary - part 2 and 3 . . Resolve to be tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant with the weak and the wrong. Sometime in your life you will have been all of these. |
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