Parkinson's Disease Tulip


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Old 09-01-2009, 01:23 PM #1
vhello2u vhello2u is offline
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Default Just back from XCell-Center

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Originally Posted by varghese View Post
I have parkinsons and am going for therapy in September.Wish you good luck.
I will be grateful if you will share with me any relevant information.
chirakal varghese.
My husband and I just came back from the XCell Center on August 31st. Some muscles in his lower bottom area are still sore for some reason. The actual procedures went very smoothly. They took out 20 viles of bone marrow on Tuesday and he had no side effects. Then they injected over 6 billion cells on Thursday. The Thursday procedure was less painful than the Tuesday procedure because they used a larger needle on Tuesday to take out the bone marrow. After the initial puncture though, he did not feel anything and he was relaxed.

On Thursday he had to rest at the hospital for 3 hours after the procedure. He had a slight headache the next morning but it went away later in the day. The next 3 days he took it easy and we walked around when he felt like it. On Monday we flew back to the USA.

My husbands procedures have had very little side effects on my husband, but the teenager in the bed next to him had an extremely bad headache for the 3 hours we were waiting and he still had it when we were leaving. The young boy was in such pain that he could hardly handle it. He was throwing up when we left.

Now for the all important question ... did it do anything for my husband? There are no immediate results that I can see. The soreness in his bottom is keeping him from bending very much. If he bends too far, he gets a sharp pain. It has only been 4 days since the procedure, it will probably take time before we see results. We are trying to start a rehab program to re-build and re-train his muscles. He is very thin, and has had a lot of muscle atrophy because of Parkinson's.
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Old 09-03-2009, 01:42 PM #2
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Default Correction

I made a mistake on the number of cells injected on Thursday: it was not over 6 billion it was over 6 million (6,640,000).
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Old 09-29-2009, 05:07 AM #3
slapp14 slapp14 is offline
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Default xcell center in germany

Hi!

I am now applying to the center. Just trying to get all the records there. When are you going? I have had Parkinson's Disease for 5 years and it seems to get a little worse each year. I have a wonderful doctor. How did you approach your USA doctor about going to Germany?

Sue (slapp14
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"Thanks for this!" says:
michele59 (02-09-2010)
Old 10-02-2009, 10:22 AM #4
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Originally Posted by slapp14 View Post
Hi!

I am now applying to the center. Just trying to get all the records there. When are you going? I have had Parkinson's Disease for 5 years and it seems to get a little worse each year. I have a wonderful doctor. How did you approach your USA doctor about going to Germany?

Sue (slapp14
Right now, I cannot recommend XCell center for Parkinson's Disease. It has been 5 weeks since his treatment and I have not seen any improvements. I am still praying and waiting to see something. After the trip there was a long recovery process in which he was very sore in his upper legs and lower bottom. He had to move very slowly and he always needed help to get up and down or in and out of cars. At this point his sleeping is worse than before his treatment because of leg spasms.

However, if you are still planning to go, then do everything possible to increase your bone marrow. You can take supplements like Jarrow Bone-Up and drink broth made from boiling beef bones (Some grocery stores carry packages of just beef bones). You can use chicken but beef is better.

My USA doctor tried to convince him not to go. However, when he found that he was determined to go, he agreed to monitor his progress. Our first appointment since we got back will be on Oct 31.
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Old 10-16-2008, 03:15 AM #5
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Originally Posted by mchanana View Post
yes ,we just came back from germany last night . my husband had this prociser done on sep. 12th , 2008. they said it usely take 6weeks to 3months for cells to work . hopefully we see some success. pray for my husband and my family .and keep your hope alive .
I am so pleased to have found this site. I have been trying to find out more about X-Cell Center from a PD who has had personal experience with them!
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Old 07-18-2009, 06:41 PM #6
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Default xcell

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Originally Posted by sweetsarah View Post
HI,
I am pleased to inform you that my son is showing slow improvement in his behavior (autism) and gross motor skills)cerebral palsy). the improvements started just a few days after the transplant and they became more visible after 3-4 weeks. I would suggest everyone who has any brain condition to go to x-cell and get treatment. Doctors are very nice. Center is very clean. I am very satisfied.
how is your son doing now. we r thinking to go there for our son, too he is 5yrs. please let us no about your experience there. thanks

Quote:
Originally Posted by mchanana View Post
yes ,we just came back from germany last night . my husband had this prociser done on sep. 12th , 2008. they said it usely take 6weeks to 3months for cells to work . hopefully we see some success. pray for my husband and my family .and keep your hope alive .
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Old 07-20-2009, 06:05 PM #7
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how is your son doing now. we r thinking to go there for our son, too he is 5yrs. please let us no about your experience there. thanks
r u there gys.plz reply soon...........
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Old 11-01-2009, 04:23 AM #8
Bobjan13 Bobjan13 is offline
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Default X-cell center Germany

Quote:
Originally Posted by mchanana View Post
yes ,we just came back from germany last night . my husband had this prociser done on sep. 12th , 2008. they said it usely take 6weeks to 3months for cells to work . hopefully we see some success. pray for my husband and my family .and keep your hope alive .
Now that a year has passed since your husband was treated in Germany, can you tell us how he is progressing please? My husband has Motor Neuron Disease or ALS or Lou Gehrig's Disease and has been accepted to have the stem cell treatment on 23 November - I have been concerned that it was just a big scam but after reading all the comments on this site from many that have been to Cologne for the treatment, I am now satisfied that the place does exist at least!! They have told us there are no guarantees and we accept that because there is nothing any doctors in Australia can do for him anyway. Do you have any information that you can pass on to make our visit easier? Also did you send your payment to them before you arrived? They are asking us to send the entire amount by bank transfer before we leave Australia - I am a bit hesitant about that. Would appreciate urgent reply from you and anyone else that reads this that can help us. Thanks
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Old 11-02-2009, 03:09 PM #9
jibberlog jibberlog is offline
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Originally Posted by Bobjan13 View Post
Now that a year has passed since your husband was treated in Germany, can you tell us how he is progressing please? My husband has Motor Neuron Disease or ALS or Lou Gehrig's Disease and has been accepted to have the stem cell treatment on 23 November - I have been concerned that it was just a big scam but after reading all the comments on this site from many that have been to Cologne for the treatment, I am now satisfied that the place does exist at least!! They have told us there are no guarantees and we accept that because there is nothing any doctors in Australia can do for him anyway. Do you have any information that you can pass on to make our visit easier? Also did you send your payment to them before you arrived? They are asking us to send the entire amount by bank transfer before we leave Australia - I am a bit hesitant about that. Would appreciate urgent reply from you and anyone else that reads this that can help us. Thanks
Hi, I had the same concerns and have travelled from Australia to Cologne with my son who has Cerebral Palsy. I took a deep breath and payed up-front and after much stress we're here. I'm on twitter and my name is jibberlog if you want to take a look. The xcell center picked us up from cologne-bonn airport and they're collecting us from our hotel tomorrow for the bone marrow extraction. I arranged the hotel and transport through xcell center but haven't paid for them yet (only the treatment). Anyway, I hope I can help you somehow so just have a look at my twitter. Good Luck!
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Old 10-27-2008, 12:00 PM #10
rdilas rdilas is offline
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Default Son with brain injury

Hi, I am new to this site but have been looking into stem cells at x cell in Germany for my 7 year old brain injured son. Would like to hear from anyone who has been there and would like to share their experience. Thanks
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