Parkinson's Disease Tulip


advertisement
Reply
 
Thread Tools Display Modes
Old 05-03-2009, 02:09 AM #31
bakelott bakelott is offline
New Member
 
Join Date: Dec 2008
Posts: 5
15 yr Member
bakelott bakelott is offline
New Member
 
Join Date: Dec 2008
Posts: 5
15 yr Member
Default

Quote:
Originally Posted by Bob from Canada View Post
Thank you very much for this interesting information. Please keep me advised of his progress and I hope that his improvement continues.
Hi.
I´m glad to tell you that since my father took the procedure in Koln, he has very importan progress in his health.
he began to do some exercise, he doesnt feel rigidity in his arms anymore.
before the treatment, my father never used to go out alone, now he make his thing by himself, and feels more self-sufficient.

I hope that his experience can help you.
bakelott is offline   Reply With QuoteReply With Quote

advertisement
Old 06-10-2009, 02:13 PM #32
SolutionsNeeded SolutionsNeeded is offline
New Member
 
Join Date: Jun 2009
Posts: 2
10 yr Member
SolutionsNeeded SolutionsNeeded is offline
New Member
 
Join Date: Jun 2009
Posts: 2
10 yr Member
Default

HI, my brother is considering traveling to the xcell center in Germany and I am curious if how your husband is now doing and if anyone has any new feedback. Thanks.
SolutionsNeeded is offline   Reply With QuoteReply With Quote
Old 06-14-2009, 06:28 PM #33
aftermathman aftermathman is offline
Member
 
Join Date: Sep 2006
Location: Evesham, England
Posts: 598
15 yr Member
aftermathman aftermathman is offline
Member
 
Join Date: Sep 2006
Location: Evesham, England
Posts: 598
15 yr Member
Default This reminds me of the

search for UFO's at Roswell. Some swear by it, others swear against it, however there seems to be little empirical evidence one way or the other.

Anyone any hard facts to post on this thread, rather than subjective comment ?

Neil.

(Don't mean this to sound aggressive, just after something concrete).
aftermathman is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Conductor71 (08-27-2009), girija (06-15-2009)
Old 07-06-2009, 08:09 AM #34
vhello2u vhello2u is offline
New Member
 
Join Date: Jul 2009
Posts: 4
10 yr Member
vhello2u vhello2u is offline
New Member
 
Join Date: Jul 2009
Posts: 4
10 yr Member
Default

Quote:
Originally Posted by bakelott View Post
Hi.
I´m glad to tell you that since my father took the procedure in Koln, he has very importan progress in his health.
he began to do some exercise, he doesnt feel rigidity in his arms anymore.
before the treatment, my father never used to go out alone, now he make his thing by himself, and feels more self-sufficient.

I hope that his experience can help you.
"he doesn't feel rigidity in his arms anymore" ... that is a big step. Has his balance improved? I am looking into Xcell for my husband, who has been diagnosed with Parkinson's. He is currently only 51, but the PD symptoms have aged him dramatically including his balance, coordination and muscle atrophy. We have a 10 year old son who needs his Dad, so I'm hoping the long trip to Germany will be worth it. I am still waiting for a response from the paperwork that I filled in a couple of months ago.
vhello2u is offline   Reply With QuoteReply With Quote
Old 07-09-2009, 06:16 AM #35
John'sgirl John'sgirl is offline
New Member
 
Join Date: Jul 2009
Posts: 1
10 yr Member
John'sgirl John'sgirl is offline
New Member
 
Join Date: Jul 2009
Posts: 1
10 yr Member
Default Progress?

Quote:
Originally Posted by mchanana View Post
sorry i could not get back with you rightway . my husband's parkinson diagnosed in 1997 @ age of 37. he had stiffness not much shaking but verry stiff and was increasing everyday . He had alot of pain in his body .madication was working but for only 2-3 hours . He was taking stelevo 100mg 6 times , azilect 1mg one time and Mirapex 1mg 4 times a day . He was not sleeping well because he had alot of pain .it was getting harder and harder everyday. i was thinking him taking to china after carefully reviwing and talking to them it seemed kind of dangers to me and my husband was not comfertable going to china . i found out about x-cell in germany about three months ago . and it was not dangeres because they take out your own bonemarrow and it 's your own stemcell . second its realy simple proscieser one day they take your bonemarrow you can go to your hotel after that second day they seperate the stemcell in there lab and third day they give it back to you through lumber puncture. which take 5 minutes then they make you rest there for 3 hours and you can go to your hotelagain . its been more then two weeks now first two weeks he was feeling verry week but now he is regaining his strenth after treatment his pain is disappearing he can sleep better now and another thing hislegs and arms were use to be stiff like a wooden log .but now they dont get as stiff i dont want to jump the gun . but there is small change .they told me to wait for at least 6 months because it take cells to start working fullyanywhere 6 months to a year. i will keep everybody posted if i see any more changes in him.

It is over a year now and I am wondering how your husband is progressing after the stem cell treatment? My husband has it too.
John'sgirl is offline   Reply With QuoteReply With Quote
Old 07-18-2009, 06:32 PM #36
uzmakhan uzmakhan is offline
New Member
 
Join Date: Jul 2009
Posts: 3
10 yr Member
uzmakhan uzmakhan is offline
New Member
 
Join Date: Jul 2009
Posts: 3
10 yr Member
Default

hi,
i just joined this site. i need some info on xcell, like how good is the treatment, any negative points, and how was the treatment with small kids. we are thinking of going to germany for our son's treatment as well, but little afraid. he is 5, special need child, have lots gross, motor difficulties, so please gys help us out here.
uzmakhan is offline   Reply With QuoteReply With Quote
Old 07-18-2009, 06:41 PM #37
uzmakhan uzmakhan is offline
New Member
 
Join Date: Jul 2009
Posts: 3
10 yr Member
uzmakhan uzmakhan is offline
New Member
 
Join Date: Jul 2009
Posts: 3
10 yr Member
Default xcell

Quote:
Originally Posted by sweetsarah View Post
HI,
I am pleased to inform you that my son is showing slow improvement in his behavior (autism) and gross motor skills)cerebral palsy). the improvements started just a few days after the transplant and they became more visible after 3-4 weeks. I would suggest everyone who has any brain condition to go to x-cell and get treatment. Doctors are very nice. Center is very clean. I am very satisfied.
how is your son doing now. we r thinking to go there for our son, too he is 5yrs. please let us no about your experience there. thanks

Quote:
Originally Posted by mchanana View Post
yes ,we just came back from germany last night . my husband had this prociser done on sep. 12th , 2008. they said it usely take 6weeks to 3months for cells to work . hopefully we see some success. pray for my husband and my family .and keep your hope alive .
uzmakhan is offline   Reply With QuoteReply With Quote
Old 07-20-2009, 06:05 PM #38
uzmakhan uzmakhan is offline
New Member
 
Join Date: Jul 2009
Posts: 3
10 yr Member
uzmakhan uzmakhan is offline
New Member
 
Join Date: Jul 2009
Posts: 3
10 yr Member
Default

Quote:
Originally Posted by uzmakhan View Post
how is your son doing now. we r thinking to go there for our son, too he is 5yrs. please let us no about your experience there. thanks
r u there gys.plz reply soon...........
uzmakhan is offline   Reply With QuoteReply With Quote
Old 08-25-2009, 01:45 PM #39
varghese varghese is offline
New Member
 
Join Date: Aug 2009
Posts: 1
10 yr Member
varghese varghese is offline
New Member
 
Join Date: Aug 2009
Posts: 1
10 yr Member
Default

I have parkinsons and am going for therapy in September.Wish you good luck.
I will be grateful if you will share with me any relevant information.
chirakal varghese.
varghese is offline   Reply With QuoteReply With Quote
Old 09-01-2009, 01:23 PM #40
vhello2u vhello2u is offline
New Member
 
Join Date: Jul 2009
Posts: 4
10 yr Member
vhello2u vhello2u is offline
New Member
 
Join Date: Jul 2009
Posts: 4
10 yr Member
Default Just back from XCell-Center

Quote:
Originally Posted by varghese View Post
I have parkinsons and am going for therapy in September.Wish you good luck.
I will be grateful if you will share with me any relevant information.
chirakal varghese.
My husband and I just came back from the XCell Center on August 31st. Some muscles in his lower bottom area are still sore for some reason. The actual procedures went very smoothly. They took out 20 viles of bone marrow on Tuesday and he had no side effects. Then they injected over 6 billion cells on Thursday. The Thursday procedure was less painful than the Tuesday procedure because they used a larger needle on Tuesday to take out the bone marrow. After the initial puncture though, he did not feel anything and he was relaxed.

On Thursday he had to rest at the hospital for 3 hours after the procedure. He had a slight headache the next morning but it went away later in the day. The next 3 days he took it easy and we walked around when he felt like it. On Monday we flew back to the USA.

My husbands procedures have had very little side effects on my husband, but the teenager in the bed next to him had an extremely bad headache for the 3 hours we were waiting and he still had it when we were leaving. The young boy was in such pain that he could hardly handle it. He was throwing up when we left.

Now for the all important question ... did it do anything for my husband? There are no immediate results that I can see. The soreness in his bottom is keeping him from bending very much. If he bends too far, he gets a sharp pain. It has only been 4 days since the procedure, it will probably take time before we see results. We are trying to start a rehab program to re-build and re-train his muscles. He is very thin, and has had a lot of muscle atrophy because of Parkinson's.
vhello2u is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Buying a mattress if you lived in Germany!! MelodyL Social Chat 8 04-13-2008 12:03 PM
Did one of us travelled to Germany last year pdinfo Parkinson's Disease 5 09-06-2007 09:10 AM
World-Class Neuro Center Opens: Georgia Neuro Center Stitcher Parkinson's Disease 0 05-16-2007 08:01 PM


All times are GMT -5. The time now is 04:56 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.