Parkinson's Disease Tulip


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Old 04-07-2010, 04:48 AM #61
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Many thanks for the replies.

Neil, I have to agree to some extent. I don't think Prosavin will ever be a cure, but it may end up being the best available treatment for people failing on L-Dopa. A cure is more likely when they discover what is killing off nerve cells in the brain. I think they still have to get the dosing and application right. They obviously need to increase the dosing from current levels tried, even though current dosing may actually have some efficacy. They also need to remove the possibility of placebo effect.
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Old 04-13-2010, 10:17 PM #62
Don Bradley Don Bradley is offline
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Default XCell-Center

You mentioned the XCell Center. I am scheduled to try it at the end of May. I'll report. Meanwhile, I've been experimenting with IV Glutathione. "Dramatic improvement" has been claimed by some. After 3 weeks of twice weekly IV, I've experienced only marginal improvement. Has anyone else tried it?
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Old 04-14-2010, 01:25 AM #63
soccertese soccertese is offline
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i tried it years ago for a month, every 3 days. got the i.v. glutathione/equip. from a compounding pharmacy, a nurse friend taught me how to give it to myself. zero benefit.
admittedly my p.d. was very mild at the time.

university of south florida, dr. hauser?, supposedly started a study. never saw any results.

since this isn't OTC, you need a RX and it isn't cheap, the profit on this is huge since it's not covered by insurance. look at the wide variety of research funded by the MJF foundation, you'd think if I.V. glut was effective they'd promote it. plus there are a lot of wealthy p.d.ers, andy grove from intel, that would likely try it and if it worked would have funded research.

dr. perlmutter promotes this treatment yet i've never read any post from someone that has benefitted yet people are getting stem cell treatments? pders will try anything, you have to assume hundreds if not thousands have tried it so where are the anecdotal reports?
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Old 04-14-2010, 09:20 AM #64
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Default Well here's one guy Soccertese ...

http://mypdstemcellexperience.blogspot.com/

who writes about stem cell treatment at the Xcell centre.

Neil.
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Old 04-19-2010, 09:55 PM #65
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Quote:
Originally Posted by soccertese View Post
i tried it years ago for a month, every 3 days. got the i.v. glutathione/equip. from a compounding pharmacy, a nurse friend taught me how to give it to myself. zero benefit.
admittedly my p.d. was very mild at the time.

university of south florida, dr. hauser?, supposedly started a study. never saw any results.

since this isn't OTC, you need a RX and it isn't cheap, the profit on this is huge since it's not covered by insurance. look at the wide variety of research funded by the MJF foundation, you'd think if I.V. glut was effective they'd promote it. plus there are a lot of wealthy p.d.ers, andy grove from intel, that would likely try it and if it worked would have funded research.

dr. perlmutter promotes this treatment yet i've never read any post from someone that has benefitted yet people are getting stem cell treatments? pders will try anything, you have to assume hundreds if not thousands have tried it so where are the anecdotal reports?
Ok, here's an annedotal report: The benefit I received from IV Glutathione was very non-impressive. I had to continue the other medications as before. However, after starting the IV Glutathione, Levodopa pills no longer became stuck in my throat.
Maybe I'll have better luck with the Stem cell treatment. Anyway, the stem cell treatment provides me with an opportunity to visit my children and grand children in
Germany.

Don
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Old 04-19-2010, 09:59 PM #66
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Quote:
Originally Posted by soccertese View Post
i tried it years ago for a month, every 3 days. got the i.v. glutathione/equip. from a compounding pharmacy, a nurse friend taught me how to give it to myself. zero benefit.
admittedly my p.d. was very mild at the time.

university of south florida, dr. hauser?, supposedly started a study. never saw any results.

since this isn't OTC, you need a RX and it isn't cheap, the profit on this is huge since it's not covered by insurance. look at the wide variety of research funded by the MJF foundation, you'd think if I.V. glut was effective they'd promote it. plus there are a lot of wealthy p.d.ers, andy grove from intel, that would likely try it and if it worked would have funded research.

dr. perlmutter promotes this treatment yet i've never read any post from someone that has benefitted yet people are getting stem cell treatments? pders will try anything, you have to assume hundreds if not thousands have tried it so where are the anecdotal reports?
Ok, here's an anecdotal report: The benefit I received from IV Glutathione was very non-impressive. I had to continue the other medications as before. However, after starting the IV Glutathione, Levodopa pills no longer became stuck in my throat.
Maybe I'll have better luck with the Stem cell treatment. Anyway, the stem cell treatment provides me with an opportunity to visit my children and grandchildren in Germany.

Don

Last edited by Don Bradley; 04-19-2010 at 10:08 PM. Reason: Typing mistakes
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Old 06-21-2010, 02:46 AM #67
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Default XCell Center, Cologne

I underwent stem cell therapy on June 2, 2010. Now I just have to wait for 2 months to see if there is any improvement.

Don
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"Thanks for this!" says:
soccertese (06-21-2010)
Old 06-21-2010, 09:37 AM #68
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Quote:
Originally Posted by Don Bradley View Post
I underwent stem cell therapy on June 2, 2010. Now I just have to wait for 2 months to see if there is any improvement.

Don
Don, good luck to you - please keep us infored about how you are doing!
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This isn't the life I wished for, but it is the life I have. So I'm doing my best.
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Old 07-26-2010, 07:23 AM #69
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Default XCell Center

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Originally Posted by Shake 'Em Up View Post
Has anyone had any direct expierience with the XCell Center in Cologne, Germany? They are doing wrk with stem cells and claim some goold results, especially for PD. Appreciate any info you may have...
I underwent the stem cell therapy on June 2, 2010. Since then, nearly two months have passed. At the end of 2 months, I ought to notice some improvement. All I can say right now is that the medications (Sinemet and Siprol) seem to be more effective than before. There seems to be less "off time". At the end of August, I am to send a report to the Stem XCell Center in Köln.

Don Bradley
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Old 09-27-2010, 12:58 PM #70
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Default Cost of X cell center

Have an X cell center trip coming up that I want to plan, and I'm just curious what the cost is for the flight, hotel stay and procedure altogether? what did everyone pay? I was told I'll need to be there for about 8 days can anyone validate this? thank you
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