Parkinson's Disease Tulip


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Old 10-20-2008, 10:33 AM #11
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Default WE are not alone:

citing a short letter to the editor of the NY Times re; an article that was titled- A Holiday From Illness, All to fleeting. (april 22)

I have been tempted many times to forgo my medication- a day, a week forever! When you feel so normal it s sometimes difficult to comprehend that you need so many pills. I always felt that I was an exception. After reading this article I can see that I was wrong. But it is comforting to know that Physicians like Dr. Dena Rifkin realize that there are things they don't quite understand, yet acknowledge their presence.

Now one of you researcher types can go dig out the article and get the magic link. I do the setup, now someone else has to do the research (which is not my bag)...a retro expression


r
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Old 10-20-2008, 02:09 PM #12
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It's about kidney transplants:

http://www.nytimes.com/2008/04/22/he...se&oref=slogin

http://query.nytimes.com/gst/fullpag...leeting&st=cse
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Old 10-20-2008, 02:26 PM #13
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Quote:
Originally Posted by ZucchiniFlower View Post
Yes, I occasionally experience a cinderella moment. It lasts about 5 minutes. I feel suddenly normal. I walk like I'm well. I usually say, "OMG, I'm walking!"

Sometimes, it happens when I'm walking to the train. I feel normal, sit on the train and then I'm kaput again. I get off the train with great difficulty, and I'm walking like a parkie again.

I always wonder what is going on that can make me feel normal again and why can't I capture it all the time. What IS it?

It's not just that I walk well, it's that I feel like ME again. It's impossible to explain, really. But it's like I have my life back, and then it's gone again in just moments. It's almost like a cruel joke.
You hit the nail on the head with this one, ZuccinFlower! This is one cruel joke that's been played on us. I've had these moments too, but mine still last a day or two, sometimes three before everything kicks back to rotteness. I'm one of those single guys that heve to do everything for myself so perhaps I'm lucky in this respect. I drag myself out of bed in the morning, who doesn't really, shuffle around until mid-morning, then if anything is going to work that day, it will by my second dose. If it does not, well then, I know I'm in for a rotten long day.

With a couple or few good days in a row, you begin to forget about the "problem" so when it appears later, it's like getting hit in the head all over again with one big reality check.

John
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Old 10-20-2008, 03:08 PM #14
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Default ZF

Thanks for doing the research. Max needs to read this...after his little experiment a few weeks ago where he went off all his meds. It reminded me of all the times my kids would say "Watch this Mom!" and then do something incredibly stupid. One of my sons (about 4 yrs-old) jumped off a balcony from the 2nd storey and broke his arm and assorted other damage. We had to take him to the hospital. After two days of relative silence from a kid who moved non stop I was sitting on the edge of his bed, and he said to me "I put my arms out, but I couldn't fly." He did however permanently traumatize the neighbours two daughters. That was 25 years ago and they still think of it with horror.

Got kinda carried away there.
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