Parkinson's Disease Tulip


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Old 03-10-2009, 09:37 AM #1
paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
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paula_w paula_w is offline
In Remembrance
 
Join Date: Aug 2006
Location: Florida
Posts: 3,904
15 yr Member
Default Do escr changes create small businesses?

How will this work now? The executive order makes a change that is perhaps ready to go? Or must organize how to execute from scratch with more esc available?

From Pres. Obama:

"For the past 8 years, the authority of the Department of Health and Human Services, including the National Institutes of Health (NIH), to fund and conduct human embryonic stem cell research has been limited by Presidential actions. The purpose of this order is to remove these limitations on scientific inquiry, to expand NIH support for the exploration of human stem cell research, and in so doing to enhance the contribution of America's scientists to important new discoveries and new therapies for the benefit of humankind."



Sec. 2. Research. The Secretary of Health and Human Services (Secretary), through the Director of NIH, may support and conduct responsible, scientifically worthy human stem cell research, including human embryonic stem cell research, to the extent permitted by law.

As i understand it:correct errors - please!This provision lifts the date limits set by Pres. Bush which means that more left over embryos are available, but it is still not permissible to use them in any way to destroy them, which means that federal funds cannot create lines with them. This remains limited to private funds. Then, it seems ok to use them for research. I'm assuming this is because of the Dickey-Wicker Amendment, which prohibits creation and destruction of esc..

But must they be purchased? Are we looking at new small businesses to make escr lines or will they be funded at academic institutions thru donations? Lots of money spent and to be made. Is this the best way? Will it be faster than waiting for public funding? It appears that the limitations remain signficant with esc; was this designed purposely to get started quickly? ; will there be an attempt to repeal the Dickey Wicker amendment? And how are they going to solve any rejection problems without therapeutic cloning?

I'm not trying to give Debi Brooks more work. I'm so glad you are here Debi, it enables us to move faster too - finally And Amy Comstock R.....this is your area - I can't make it to PAN, would love to have you respond, but know you are so busy right now with the forum starting next weekend.

Sec. 3. Guidance. Within 120 days from the date of this order, the Secretary, through the Director of NIH, shall review existing NIH guidance and other widely recognized guidelines on human stem cell research, including provisions establishing appropriate safeguards, and issue new NIH guidance on such research that is consistent with this order. The Secretary, through NIH, shall review and update such guidance periodically, as appropriate

NIH has no power to change the Dicky Amendment. How hard will anyone push for congress to do this and how long will it take? Is the pd community ready to work together with respect for eveyone's feelings, values and opinions?To get this done if necessary [personally, I'm hoping while we are doing this....that private businesses and donations will fill the need.] we must. But NIH has all the money.

We all do not agree.....but who wants to behave like congress? For those who do, the option to go and change their minds is an option for you. Let's not waste time, tho, trying to change each others' minds. I'd rather heal myself, don't like the idea of putting other peoples "stuff" in my head, but I have become totally exasperated over unsubstantiated claims and working for future generations to successfully receive this therapy is pure speculation at this point. So let's do this and why give up on us [more advanced]? We musn't let them convince us.....and they have and i have believed that....that we who are advanced have to sacrifice ourselves. That was what essentially happened whem gdnf was halted and i believed that it was over for us then.. i've changed my mind - i still want something now and it's not a DBS; So I'll help in any way I can with ESCR for future pwp, but expect more work on things for now , - altho it's an exaggeration that Obama has changed much and it's true that Bush actually did start this research. He also provided lines. I am unclear about Obama providing lines and am asking for help there and anywhere I am in error please. Why is it not obvious from the defects in the lines, that attention must be given to age or other factors, rather than blame Bush? This is one issue...we have to stick to it and with the facts. Now if the embryos are defective, do we blame Obama? No, we still will probably blame Bush..lol

I'm not getting political, i'm stating the facts, which have long been distorted. I am not knowingly distorting anything about Obama. Feel free to disagee, but if my facts are incorrect., it's not political; i think i have proven that I am not about Bush or Obama - it's about time.

What a big mouth i've become....out it flows... i'm sorry to be so dominating, please jump in...I could use the support and don't want errors in my information.

ok i have to clean the house since i'm getting a visitor ....Carey's coming before she goes to PAN. I think my husband is moving out for a few days.....we'll drive him crazy and probably won't stop talking and won't sleep the whole time she is here. I'm going to post, then edit.

let's hear your thoughts,
paula
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paula

"Time is not neutral for those who have pd or for those who will get it."

Last edited by paula_w; 03-10-2009 at 01:02 PM. Reason: too big
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