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09-17-2009, 08:31 AM | #31 | ||
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In Remembrance
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i bought a posture stability brace at a medical supply store. it wraps around your abdomen and lower back , but has a supported extension covering the whole back and shoulder straps. It can all be closed and adjusted all around the abdomen.
I live in the brace unless I am eating and don't wear it when I sleep or just need a break. It really helps and my husband says I look straightened out. But the exciting part, is when I first wake up, I take meds and put this brace on immediately and it actually reduces and has even eliminated the 40 min. of dystonia that I have to suffer every morning. It was more that $80, I wonder if it could be prescribed and paid for by medicare. It's too late for that for me but I'm finding it worth every penny for my entire back and painful shoulders. paula
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paula "Time is not neutral for those who have pd or for those who will get it." |
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10-03-2009, 03:52 AM | #32 | |||
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10-03-2009, 03:55 AM | #33 | |||
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How is the experiment coming along..it is October now. My dad was given a "TENS" machine to try at the VA for neck & shoulder pain. Is this anything like what you are using?? Aunt Bean
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10-03-2009, 05:50 AM | #34 | |||
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In Remembrance
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Yes, what I have is a TENS unit with a consumer interface (i.e. pre-programmed) but I still haven't done much more with it. I'm working on the ALA/ALC at present with encouraging results and will get back to this one eventually.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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10-06-2009, 03:50 AM | #35 | ||
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Junior Member
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Thanks very much for the information. I've been experimenting for several days with erratic results. Sessions with the stimulator lasted only 5 minutes.
Again, thanks very much don Bradley |
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10-07-2009, 08:38 AM | #36 | |||
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Senior Member
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In the last analysis, we see only what we are ready to see, what we have been taught to see. We eliminate and ignore everything that is not a part of our prejudices. ~ Jean-Martin Charcot The future is already here it's just not very evenly distributed. William Gibson |
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10-09-2009, 10:26 PM | #37 | ||
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Junior Member
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My experiences agree with yours. Electrical stimulation of the dorsal cord with the muscle stimulator works spectacularly well once. Attempts at repeating the experience have failed.
Now I'm experimenting with randomly varying pulses. Average intensity is 20 mA, duration 1 minute Don |
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06-03-2011, 11:25 AM | #38 | ||
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I had a question today from a patient about getting a dorsal cord stimulator (implantable device to help with back pain) and saw this older thread. Seems like different stuff (machines versus surgically-implanted device)...but wondering all the same if anyone has ever come across this. My contact mentioned they'd "seen stuff on line that it was helpful for PD patients"...
Debi |
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06-03-2011, 12:21 PM | #39 | |||
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way back in the early 1900s edgar cayce recommended spine stimulation with his invention called a wet cell battery because he viewed parkinsonism is an imbalance in circulation annd communication between the sympathetic and parasympathetic systems..he also recommended daily massage. you can google cayces wet cell battery. if i remember seems he incorporated silver and gold solutions too. there is a lot of NIH studies done by dr sandyk on emf pulsing and pd. i would love to see the mjff consider this type of therapy ...i am confused by michaels statement that you are in business to go out of business yet it appears that profit has to be the venue to achieve this goal isn't that contradictory?..are you integrating any complimentary medicine in your work? btw kudos to mjf for achieving some semblance of homeostasis. maybe its more than the med cocktail. c'mon michael...is it some wonderful immune modulator? as with all illness there exists an x factor in the concept of grace and healing -i'm not so sure you can bottle that! thanks md
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Smooth seas do not make skillful sailors.... Nature loves courage. The day science begins to study non-physical phenomena, it will make more progress in one decade than in all the previous centuries of its existence. ~ Nikola Tesla Last edited by moondaughter; 06-03-2011 at 01:17 PM. |
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06-03-2011, 01:38 PM | #40 | ||
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I can tell you that "vibrational therapy" in the hands of people who know what they are doing can be quite helpful for many conditions. Parkinson's is NOT one of them. Sorry to be a huge wet blanket here. I've been able to really make a difference using the equipment on other people with other ailments and that is a blessing. I really, really wish it worked on PD but, it doesn't. I also saw a mention of the vibrational chair in this thread. Way over priced and doesn't work!!!! Now, just to clarify, vibrational therapy can make you generally feel better. But, we're talking about spending thousands of dollars to feel a little better once in a while. NOT worth it. |
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