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05-02-2009, 04:20 AM | #1 | |||
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In Remembrance
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Just wondering if the increased dose was making any difference.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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05-02-2009, 12:09 PM | #2 | |||
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In Remembrance
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Hi Rick,
Not that I could really put my finger on. I am doing OK though. Yesterday, I cut the half acre of grass, strimmed all the edges, weeded the borders, washed the car, cleaned the alloy wheels with a special cleaner my son bought me, got out the high pressure washer and cleaned all the patio, you remember the size of that, and trimed a high conifer at the front using a very heavy mains cutter on a stepladder. After 18 years of PD, has it made a difference? The problem is, I don't know if I would be any different if I did not take cucumin! All I can say is I am not cured, but I feel my progression is slow. Ron
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Diagnosed Nov 1991. Born 1936 |
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05-02-2009, 02:38 PM | #3 | ||
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Ron,
Its so wonderful to read what all you did in one day. I bet your garden looks great! I still remember your beautiful garden! By the way, I might be coming to London in July, may be we can meet again. Rick and you are great examples of what a difference positive thinking can make to life with PD. Thats exactly what I need today, a little adjustment to my attitude! Now time to get back to some things I gave up because its hard to do. Thanks! girija |
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05-02-2009, 02:53 PM | #4 | |||
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In Remembrance
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You are entirely too modest. That list would make many 40-year olds in perfect health whimper.
So, how long have you been taking the curcumin? And, as I recall, the other mainstay for you is CDP Choline. How long on that? Anything else? Quote:
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000. Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well. |
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05-02-2009, 03:40 PM | #5 | |||
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In Remembrance
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Girija,
Great to hear from you again. I would love to see you in July, we go on holiday to Venice in June, via the Orient Express!! so we will be home in July, Just give me the dates. By the way, have you any contacts in Amritser, for James on his cycle round the world? He is currently powering through Iran. Rick, I have been taking curcumin for around 7 years now. You are right, I have also taken CPD Choline, (citicoline) for about the same time. I have cut it down from 500mg per day to 250mg in the last year. It is given to stroke victims to aid recovery. It aids brain metabolism. Oh to be a 40 year old again in perfect health, but I'm 73 this year!!!
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Diagnosed Nov 1991. Born 1936 |
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05-03-2009, 01:32 AM | #6 | ||
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Thanks Ron, I will email you my travel plans. I personally dont know anyone in Amrit Sur, I can ask a few friends who might have family there.
Girija QUOTE=Ronhutton;504824]Girija, Great to hear from you again. I would love to see you in July, we go on holiday to Venice in June, via the Orient Express!! so we will be home in July, Just give me the dates. By the way, have you any contacts in Amritser, for James on his cycle round the world? He is currently powering through Iran. Rick, I have been taking curcumin for around 7 years now. You are right, I have also taken CPD Choline, (citicoline) for about the same time. I have cut it down from 500mg per day to 250mg in the last year. It is given to stroke victims to aid recovery. It aids brain metabolism. Oh to be a 40 year old again in perfect health, but I'm 73 this year!!![/QUOTE] |
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05-03-2009, 09:23 AM | #7 | |||
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Quote:
Ron; PLEASE stay off the ladders!! It simply is not worth the risk, especially with your bad shoulder. Denial of your PD is ok, but doing things you KNOW are dangerous isn't!! All it takes is ONE bad fall and you are done for! EX: Natasha Richardson. your friend Charlie Black |
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05-03-2009, 01:24 PM | #8 | |||
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In Remembrance
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Thanks Chasmo, I will heed your very wise advice! Thank you so much for your concern. I certainly don't attempt my double aluminium extension ladder anymore, which goes up about 30 feet! However, I felt reasonably safe on a small stepladder (like a V upside down). I can hold on to it or if i need both hands, lean across it for support..
But you are quite right, I won't even touch that in future. My 6 feet 4 inch son was coming with his family today, and I should have waited for him to do it. However, you know what it is like when you have never been accustomed to asking for help.... Never again, you have my promise!!! Very Best wishes Chasmo, Ron
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Diagnosed Nov 1991. Born 1936 |
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