Parkinson's Disease Tulip


advertisement
Reply
 
Thread Tools Display Modes
Old 05-27-2009, 11:11 AM #11
indigogo's Avatar
indigogo indigogo is offline
Senior Member
 
Join Date: Aug 2006
Location: "all the way over on the West Coast"
Posts: 1,032
15 yr Member
indigogo indigogo is offline
Senior Member
indigogo's Avatar
 
Join Date: Aug 2006
Location: "all the way over on the West Coast"
Posts: 1,032
15 yr Member
Default heat is my major complaint

I am so glad to see this subject being addressed here. I always feel like such a baby if I complain about the heat.

It was 85 in NYC for the Unity Walk this year; I stayed in the shade and tried not to move too much; only a few of our group even attempted the walk; some didn't complete.

I think I am much more sensitive than others - still it is nice to have a general PD connection confirmed (my doc says we lose the ability to sweat out of our hands and feet, so it is all directed to the head and trunk - I have tested this and it appears to be true for me).

I agree with John - I don't drink enough water because of the bladder control problem. And I get a lot of social pressure to "get out and enjoy the sun!" living in the Northwest. I don't have air conditioning (not common here; ubiquitous though in cars), so I dread the coming summer and hope it doesn't get too hot!
__________________
Carey

“Cautious, careful people, always casting about to preserve their reputation and social standing, never can bring about a reform. Those who are really in earnest must be willing to be anything or nothing in the world’s estimation, and publicly and privately, in season and out, avow their sympathy with despised and persecuted ideas and their advocates, and bear the consequences.” — Susan B. Anthony
indigogo is offline   Reply With QuoteReply With Quote

advertisement
Old 05-27-2009, 05:28 PM #12
Fowki's Avatar
Fowki Fowki is offline
Member
 
Join Date: Jan 2008
Location: Southern California
Posts: 102
15 yr Member
Fowki Fowki is offline
Member
Fowki's Avatar
 
Join Date: Jan 2008
Location: Southern California
Posts: 102
15 yr Member
Default

Heat is one of my greatest enemies.....I have profuse facial and scalp sweating. It is so embarassing!

My neurosurgeon suggested a surgery to sever the sympathetic nerve that triggers the sweating. They go in with a scope via the armpits and sever the nerve at the thoracic spine.

I just don't know if the insurance company would deny the request as cosmetic and not medically necessary....

Ah, the joys of YOPD!
__________________
Kimberly M. Fowler

Each player must accept the cards life deals him or her: but once they are in hand, he or she alone must decide how to play the cards in order to win the game.
-- Voltaire


dx'ed w/Young Onset Parkinson's Disease May 2006 at age 43. Symptomatic since 1997 or earlier. DBS June 22, 2010

dx'ed w/TN on right side 2007. GK x4, last GK 02/2013
Fowki is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
indigogo (05-27-2009)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
The heat and our pets Koala77 Pets & Wildlife 22 02-08-2009 07:17 AM
The Heat and Weakness. SallyC Multiple Sclerosis 24 07-18-2008 10:40 PM
I think my cat's in heat again Doody Pets & Wildlife 8 06-27-2008 05:11 PM
Disabling Fatigue- Heat intolerant It it my neuropathy savannah Peripheral Neuropathy 14 06-26-2008 06:37 PM
Heat wave! AfterMyNap Multiple Sclerosis 23 01-09-2008 12:26 PM


All times are GMT -5. The time now is 01:13 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.