Neither have I but to paraphrase W.C Fields I'd rather be an advocate,activist and altruist than being in Philadelphia.

Apologies to you Carolyn! and to W,C, wherever you are. Bob C

true. bob sorry too carolyn..lol
paula

Just like vowels and consonants, Catholics and non-Catholics, optimists and realists, there are Parkinson people and the temporarily healthy. (Credit for last phrase goes to Greg,I think).

One of my biggest, illogical fears is that somehow,someday I would end up in prison. In actuality, I am honest and law-abiding, but suppose I panic at an auto accident and flee the scene or perhaps I might inadvertently take a book from Barnes and Noble and be stopped in the mall, unaware of my alleged thievery. Off to jail for me! It is a ridiculous worry. I hope.

However, in a way, I am already in prison. This disease is always incarcerating me and daily it reminds me. In this prison, there is a possiblity of pardon, but also the probability that the pardon will never come. I know all of you share this sentence, and I appreciate so those of you who advocate, like inmates reading law books.

Jayne, your comment to Debi that we are not unintelligent, we just look it, is so true. Also, the feeling of immunity from Parkinson's by those without it is predictable. Without a doubt some of those who walk unfettered by PD today might be in for that inevitable thumb twitch tomorrow - so innocent in appearance yet so malignant and insidious in its forecast.

I know I should do more, period. It is just that I am trying hard to hold on to normalcy until I no longer can. I so want to disappear unnoticed into the world of others. However, the legion of "us" marks my place.

By the way, I grew up in Philadelphia and play scrabble daily. Loved the first and depend on the second for relaxation.

Ann

I post so much, thought , "I'm trying to reduce my posts, etc etc. i can't post again." but why ignore your message, it is really appreciated because you, too, have been here since??? i am thinking for almost the whole ten years?

i hope i'm not wrong in detecting the humor in confessing your imagined fear of prison...lol. Those that know you, will agree I think that you don't look much like a person who would commit a crime. [Ann is a petite, blonde, retired teacher with a handsome husband who is funny and a local politician??? or was at one time?]

if you can blend in normal do it. the whole physical, social isolation aspect is ignored in these conversations with no body language.

the joke was all bob's fault.
nice to hear from you,
paula

Dear Rick: Maybe you could consider adding a bit entitled: "For the newly diagnosed: why you shouldn't blow your brains out after reading this post."
-Rose

Unfortunately, we old timers lost our rose coloured glasses a while ago. This is reality.

Rose, i think that is an excellent idea and should be written right now in a thread like the rest if the book. Rose do you want to start a new thread with that title? Rick?

a grand idea hope you consider it.....

paula

sorry sinemet surge...it could wait till tomorrow. blue d - we need it more than the early onset..lol

I had already softened it on my site to urge a pro-active approach from the beginning. I put great store by hope but only based on truth. I fear that the truth as I see it is rather dark and frustrating at times.

i'm in friendly, nerdy mode but this strikes me as an exercise that can produce something new.....bigger than the words but with the emphasis on honesty. with a few ground rules, like no rules [except forum rules]and no telling people they have to be postive, no condemnation,no limitations, no time limits... put on your earphones and favorite music and think it out.

i know i know....i'm on - like i said just think about it lol i see a video possibility it is accidentally[?] a great idea imho. we all have had "THE THOUGHT', exactly why shouldn't they blow their brains out?

paula

oh i just realized it might be viewed as unsafe and too close to the current reality for t hose who are suicidal right now? even tho its' reasons why they shouldn't. well should we ask doc john about it or just forget it?

ok lost first one, my own computer shut down so here's a short one that includes key words that may have been misunderstood.. the idea means to truly discuss why they shouldn't do this, it is a discussion of hope andadapting to life. when rose asked rick i'm not sure of the meaning - but it spurred the idea in my head to come with literally that - reasons to not do such a thing.

if you thought differently i hope you would ask me. As jaye metioned we can look stupid but we aren't. we are careless tho and leave out details. however the topic may be too difficult anyway.

my thoughts were that we could get each other out of the negative funk here at the moment. but t this may be a blog topic. perhaps doc john wll consider blogs.

paula