[paula_w]

i owe my neuro a call back to schedule an MRI in prep for a DBS. LInda H. sent me this email, and lo and behold this is the doctor my neuro referred me to. Charlie or other DBS experts, do you know anything about this procedure? i was referred to the surgeon not the procedure, but i'm sure it will come up.

http://www.orlandosentinel.com/featu...,2743540.story

thank you,
paula

adding: seems it's a new device ,not a new procedure.

[GregW1]

Paula,

I read the article in the Sentinel twice. Other than a reference to a better stim-adjuster, I couldn't find any info that would indicate this is anything other than slow media pick-up on DBS. The general reading public may never have heard of DBS, so the paper may have spiced it up by treating it as a new development. Again, somebody please correct me if I wrong.

There is, however, a new DBS procedure which I think is still in clinical trials, that targets the globus pallidus rather than the subthalamic nucleus. I'm sure there are others here that can explain the details of this alternative to DBS-STN.

Hope this helps.

Greg

[jeanb]

paula,

I found this - don't know if it helps or not

jean

[paula_w]

yea i need to read again....is the wrieless part new?

thanks greg i didn't call the neuro about the MRI. He knows i'm reluctant.

Who would have thought we'd become bionic?]

thanks greg.

paula

Originally Posted by GregW1

Paula,

I read the article in the Sentinel twice. Other than a reference to a better stim-adjuster, I couldn't find any info that would indicate this is anything other than slow media pick-up on DBS. The general reading public may never have heard of DBS, so the paper may have spiced it up by treating it as a new development. Again, somebody please correct me if I wrong.

There is, however, a new DBS procedure which I think is still in clinical trials, that targets the globus pallidus rather than the subthalamic nucleus. I'm sure there are others here that can explain the details of this alternative to DBS-STN.

Hope this helps.

Greg

[vlhperry]

The research about placing the stimulator in the lower spine rather than in the brain. It is supposed to be less expensive and easier surgery. It is based on the premise that Parkinsonism is a nerve disorder rather than a brain disorder. Somehow a poison enters the nervous system via the lungs or digestive tract and makes its way to the nerves via the blood. Then travels up the spine, destroying or blocking the pathways through which the neurons travel from the brain down to the spinal chord. I do not think they are experimenting on people yet, only rats, which I had the time to try it.

[paula_w]

Yes Vicky, thanks, it does look easier and time is the problem; hopefully they won't have to use placebo.

paula

Originally Posted by vlhperry

The research about placing the stimulator in the lower spine rather than in the brain. It is supposed to be less expensive and easier surgery. It is based on the premise that Parkinsonism is a nerve disorder rather than a brain disorder. Somehow a poison enters the nervous system via the ex lungs or digestive tract and makes its way to the nerves via the blood. Then travels up the spine, destroying or blocking the pathways through which the neurons travel from the brain down to the spinal chord. I do not think they areperimenting on people yet, only rats, which I had the time to try it.

os

[chasmo]

I have not heard of planting the leads in the spine. I'm doubtful of that since the DBS's purpose is to affect certain areas of the brain. Essential tremor often targets the VIM or the globus pallidous pars interna and their is a trial going on now I believe for the PPN which is for gait and balance control with PD.
The globus pallidous vs The sub-thamic nucleous target area has been double-blinded with the STN the winner for overall symptom control as I recall.

As far as the rechargeable batteries go, they are a great idea IF they work as advertised. I do not know the answer to that one. It is advertised as extending battery life to 10 years, which is great. The jury is (and will be out) for sometime on that one.
There is nothing new in this article.

Charlie

[Thelma]

Having or not having a DBS is such an important decision and not to be taken lightly that deserves to be on it's own here. I know you Charlie have a site. Why is it not refered to here as it is so important that this information is not put on helter skelter throughout the posts.

I am leaving for what I hope will be the last episode of treatment in my fight. I want to thank all of you for allowing me to be here and I wish so much for you all that my words are stuck in my throat. I will hopefully talk to you all at the end of Sept if they will not allow me to use my laptop. Then we will talk about Stem Cells again. Never will learn to shut my mouth eh. I will miss you all.

Take care Thelma

So many people are not posting and so many people have these diseases that reallly need to talk and we need to hear from them. So people let them here know who you are and let them give to you whatever you need. None of us can go through these diseases alone and you don't have to have any one disease to post here. These people relate to all lhuman beings be they Parkinsonians or whatever. Take this choice you have and accept their help because to help them or ylourself is to help all in the long run.

Ha thought I would shut up....................pity you lol lol lol

[olsen]

http://neurotalk.psychcentral.com/sh...on+spinal+cord

rick was conducting his own version , though noninvasive stimulation delivered thru the skin.

[paula_w]

Thanks all. It's amazing how the media will 'report" something. i have another question for anyone who may know...or have one...i see a trial center here in Florida with Dr. Okun, using the Libra system by ANS, rather than Medtronic.This is a study out of St. Jude. It's a trial, so unless you know someone i'm not sure any results are available. Just checking on the chance someone may have heard something.

paula