I have the purple feet, bob, and have read about someone else here with the same - bottom two thirds of lower leg are both redder and have a tendency to purple - no-one seems concerned when I mention it, but you say there is a name for it?
Lindy

I, too, am a member of the Order of the Purple Foot and thought I was the only one because no one ever spoke or wrote of it. But the only time I ever get them is in the wee hours (2 to 4 AM). I only notice them if I go to the bathroom (i.e. no pain or other sensation). I just assumed it was a weird form of diabetes or something. Anyone else?

And, yes Bob, those are the dreaded curly toes. Like you are trying to rip a divot out of the linoleum. Mine are triggered when I first stand up in the morning, last 15 minutes max, and suddenly are gone.

Purple hands, puurrrpull hands
Wasn't that a big hit for Prince? I will tell my neuro about other people noticing the same thing - hands and feet turning purple. They told me the word for it but it was in Latin, and I have never been to Latvia. I will ask but I don't get to see him for a long time.
This curly toes nonsense is something I never heard of before. Me, it is often most of the day; my father's toes literally crossed over each other when he got PD (He had PD, diabetes, skin cancer, Alzheimers. Died of a heart attack. I'm not kidding.)
I had inserts made for my shoes - the real expensive ones where they take a cast of your feet and all. It helps but not always. I get blisters on all my toes. I am not complaining here, I'm marveling. Like, what is the point of that? At what point in the evolution of the species did we invent the curling toes syndrome and inject it into our DNA? Somebody has been asleep at the switch. It does not make a lot of sense. And when I go to work with firewood, hauling branches, or sometimes just walking in the forest, I notice that I am trying to grip the ground with my toes, even though I am wearing heavy work boots. I cannot actually grip the earth with my toes. But I try to. This disease seems to think it is some sort of comedian. I mean, the disease is making fun of me, right?

I wonder if people who have never taken meds have curly toes?

I think it is called livido reticularis. I developed it right after I began taking amantadine. When I cut my daily dose from 200mg to 100 mg per day, it got better. I also had seriously swelled feet, which also improved after decreasing the amantadine.
I still have the same blotchy effect on both my legs and forearms (still take 100 mg amantadine per day).
Robert

The one that I think that Robert is describing is a skin pigment purple blotching that is stable.

The other that I was referring to is similar to circulatory effects from applying a tourniquet but doesn't seem to have skin temp changes or swelling. Because of when it appears I suspect it to be related to muscle tone loss or something.

mine is not a stable pigment thing, more a circulatory thing, and I relate is to micro vascular and micro muscular changes that have occurred with medication use, and that do not seem to reverse no matter what i do, though there are visible changes throughout the day

lindy

Yes. My dad has a terrible time with them & it has happened to me a couple of times. Dad was diagnosed as essential tremor many years ago. I've not yet been diagnosed, but have an appointment for Nov 9 with a neuro. When toes curl upward , it seems to be even more painful for dad. Mostly it has hit me first thing in the morning when trying to wiggle into shoes

I can report that I too had curly toes in my life before meds. In fact, it was my first sinking suspicion that my tremor was due to PD and not ET- toe cramping is often an early sign of PD.

My toes, at first, used to cramp upon exercise, then it was after I walked for a while, now it seems to be only first thing in the morning...so all in all, I'm lucky I respond to meds so well.

Laura

That is when I get them as well. No other time, even if Off. Some type of circadian thing I assume. Maybe the rise in cortisol.