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classification of PD as a movement disorder

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Old 08-17-2009, 04:42 PM #11
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Quote:
Originally Posted by cochrankat View Post
A thought spurred by seeing how the ball on ECT/PD fell between the psychiatrists and the neurologists:

The longer I live with PD, the more I think that to term it a "movement disorder" is limiting and misleading. PD affects everything, including cognition and mood. The sooner we all admit that, the sooner we can break out of the box our fragmented, competitive system of health care and medical specialties has put us in.

Kathleen
Kathleen,

I have thought about this too. It's nice that you've mentioned it here. Whenever I've had to explain to someone that it's more than just the stiff ness and tremor they look at me like I'm werid. I have to explain to them that it affects the whole body including the plumbing to put it lightly. They seem to understand once I explain that it's all about slowing down and stiffening up.

John
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Old 08-17-2009, 05:19 PM #12
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The Langston piece is a good start. I think I am going to mail it to every doctor that I am likely to encounter.

If the inflammatory thing holds up, it could be argued that it isn't even a neurological disorder in the strict sense. The immune system is the culprit and the CNS is just an innocent bystander. That's going to be a tough sell.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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