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Old 08-27-2009, 10:02 AM #6
leaf leaf is offline
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Join Date: Aug 2006
Location: Bristol UK
Posts: 7
15 yr Member
leaf leaf is offline
Junior Member
 
Join Date: Aug 2006
Location: Bristol UK
Posts: 7
15 yr Member
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My reflexes can come and go, depending on whether or not I have a significant palsy or not. My legs and arms can go completely dead very easily, but so far they've come back, but there has been slow accumulative damage, that's what HNPP does.

Strangely I can have very brisk reflexes when I do have sensation and motor strength. Which really seems to puzzle the Neuros. I think HNPP might be an exception. Usually it takes a long while for reflexes to return after injury. I know that many with CMT which is a Motor-sensory neuropathy (as is HNPP) often describe muscle weakness with continued missing reflexes.

My son has permanently lost ankle reflex and the others are diminished. But presently he gallops around without a care. He's well in his 20s.
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