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Old 08-28-2009, 12:00 PM #5
lizziebeth lizziebeth is offline
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Join Date: Jul 2009
Posts: 46
15 yr Member
lizziebeth lizziebeth is offline
Junior Member
 
Join Date: Jul 2009
Posts: 46
15 yr Member
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Hi everyone,
I also have facial tingling/numbness at times. I feel it most often in my chin, but, at times, have felt it in my cheeks, forehead and scalp. My symptoms began approximately 18 months ago with tingling/numbness in my feet. About 6 months later I began to have symptoms in my hands. Unfortunately, during the last 2 months, the tingling/numbness has begun to affect my entire legs, forearms/hands, my abdomen, buttocks and facial areas. Other than my lower legs and feet my symptoms seem to vary in their intensity day-to-day. Based on my EMG and physical exam, I've been diagnosed with sensory neuronopathy. Unfortunately, thus far, they've been unable to determine the cause. Except for testing for celiac disease (which I hope to be tested for shortly), I've had all the appropriate lab work with no significant findings. Since my labs for Sjogrens were negative, I may be having a lip biopsy for further evaluation. Anyway, at least in my case, the facial symptoms are part of the whole neuropathy/neuronopathy picture. The neurologist indicated that it is affecting all my nerves, since it is presumed that, based on my EMG/symptoms, that the problem lies at the level of the dorsal root ganglia. Enough about me...I didn't mean to "hijack" the thread. I hope that info. might help...
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