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Old 12-02-2009, 09:05 PM #1
diagnonsense diagnonsense is offline
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diagnonsense diagnonsense is offline
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IMO, Mayo isn't that special.

The wait for every single test is outlandish. (I had a CT and it was over an hour long, and the dolts couldn't even get my vein properly!!!)

Blood tests, it took 2 persons to draw.

... I mean seriously.

And on top of all that waiting they didn't figure a damn thing out.
They said if I progressed they'd want me to go back so I could do a spinal tap and nerve biopsy.

WELL.. I live in WI.. I am not driving 3 hours to do something that I can do in my own city.
So, I've since progressed and had the spinal and nerve biopsy (in my own city).

I go back to the neuro on the 8th.
And probably won't go back to Mayo again.. cause I don't particularly feel the need.

Unless you have some UBER strange case, I wouldn't fight to get into a large teaching hospital like that.
Just use the lizajane spreadsheets and figure out what testing you need on your own.
Some blood tests will probably need to be sent out though, like my city although large did have to send out some of the blood tests.
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Old 12-03-2009, 09:34 AM #2
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nide44 nide44 is offline
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nide44 nide44 is offline
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Just a note
Before any spinal taps or 'sural' nerve biopsies, have a
"Skin Punch Biopsy" done. Minimally Invasive, no pain,
no after affects. (small nerve testing)
If its not done in your facility, Johns Hopkins has a mail-in kit,
with instructions on how to do it and how to send it back to them for
microscopic analysis.
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