I am going to have to look into my test results to see what I have and have not had done. I was wondering;


we lived on an Airforce base for 16 years with well water. I always have wondered about the water there because I remember there being something about the city near by worrying about chemicals leaking into their water system. But if there was something wrong with the water wouldn't my kids and spouse be having problems too?

not nec so, your spouse and you dont share the same genetics, and your children only half.

maybe, maybe not. It depends on the genetics and how people clear toxins or not. If you Google military base EPA or military base contamination...you can find alot. I did that type of search a long time ago during the Cynthia Sommer trial, where she was accused of poisoning her hubby with arsenic. Her hubby was a marine who inspected bases for toxins, and became ill right after returning from one, and he suddenly died in the night from cardiac arrest and his wife arrested years later after NCIS wanted to blame someone. The samples NCIS provided to a poor lab showed high arsenic levels. But the slides of her husband's tissues showed NONE. (I always suspected a frame up for her, since they went after her over 2 yrs after the death). She has been since exonerated, and is now suing NCIS and many others for false imprisonment.

examples:
http://www.unbossed.com/index.php?itemid=1628
http://www.govexec.com/dailyfed/0307/030707cdam2.htm
http://docs.google.com/gview?a=v&q=c...vkv1ILDrGVXw0A

This is one article about the California contamination:
http://content.usatoday.net/dist/cus...31671537.story

hi Julie

I used to have neuropathy with very severe unremitting pain (I remember walking around the house crying) but these day my problems are progressive motor loss and numbness. My neuropathy seems to be progressive, and has just spread to one hip making it difficult for me to lift the leg up on those sides.

Neuropathy takes so many forms, that it's pretty impossible (and probably rather pointless) to compare severity, but I must say although many would call my current neuropathy severe I prefer it to the severe unremitting pain I experienced in the early days. I have no idea why my neuropathy changed in the way it has, I am just grateful that it did.
I hope you find a way to improve your situation soon

regards

raglet

I have a lot of pain with My PN.

I lose all feeling in my legs and feet when i walk or stand for very long. I lose muscle control also. Its pretty awful. Lately i have been experiancing nerve pain at night running down the length of my arms into the palms of my hands. Now that was painful.

i have applyed for disability and have been turned down once but i am not a quiter and i am going to fight for the benifits i have. I have always worked fulltime up until this last couple years. now i dont work at all.

Sure hope you find some relief, get a good dr. who you can feel good with and that could help you a lot. It has me.

Having had the 'joy' of having to go to the ER twice this summer? Trying to explain the CIDP possible muscle loss and pain .... I equate to those with severe burn victims. THAT is something docs can relate to-other than neuros. In my own case? It was IF the lower half of my body...while there? WAS DISSOLVED when trying to use it.
Those same docs would ask me about my 'pain levels'...I would bluntly state that I do NOT UNDER ANY CIRCUMSTANCES do those stupid 'happy-not happy faces'! Saying It's about a 6-8 on a good day? And now that bone from a fracture is almost sticking out of the skin? Well, it is no different. Thing is..thruout YOU HAVE TO BE CONSISTENT.
I've found that pain pills can help at times...but not the actual elimination of pain. They merely dull your mind so you don't care! In that same hospital, last time? I KNEW I must be in deep trouble when they debated about how much morpheine to give me. I didn't care on that stuff, but the other side effects kicked in and that created new problems [constipation of the major sorts]
Pain pills only cut the top of the sort of pains we experience. Sometimes 'getting by' is the best we can do? My view? As long as you can FEEL, there is hope! I still feel pain, tho I should not. I at times feel less pain than at other times.
While toxic neuropathy may be your issue? I would take a peek at this web site ...that Glenntaj or another good person found-it's a treasure.
http://neuromuscular.wustl.edu/naltbrain.html
Read and learn, learn the questions to ask.... Don't look for the cause, as it's not going to be simple, unless there is one heck of a distinct cause/effect aspect apparent. Look at the tests you might need to get diagnosed and then treated properly. I'd had a neuro say essentially: "it was all in my head' In my case, it was not - it was an autoimmune neuropathy and treatments are expensive but essential to daily functioning and pain relief. I am luckier than others tho, who for some reason do not benefit from some treaments.
Lastly? Being afraid, scared stupid and lots of other WHAT-IF's do crowd the mind? Do not let fear win! Learn, be smarter than your doc at times so's you ask those key questions or, tell those key bits of personal 'history' that get you diagnosed. What we have does require a good nutritional and vitamin regimen as Mrs D suggests. It HELPS. But all of this takes time, persistence, good eating and good treatments. Think of it as being struck by lightening? Only what's happened/happening is chemical. And, also? Body malfunctioning programming.
Testing is the process of 'elimination'. Keep at it and no one, please don't cry until the jury is back? Save your energies for finding out what all is going on...then figure out how best you can deal with it all. 's - j

Hello Julie k,
A lot of folks have helped me on this forum, just curious what AF base were you at, I grew up a AF brat.
Lanny

My husband was stationed at Hill AFBm Utah. I googled Hill and founf that they are dealing with Tridoroethene in the ground water near the side of the base we lived on. I don't know what that is, but I guess it has been there since the 1940's.