Cyclelops, I have dysautonomia as well--can't remember if I posted about that here--do know my memory has big holes in it.

Have they found a cause for your symptoms? I don't have diabetes or smoke, or have high blood pressure, never did street drugs or abused prescription drugs--lived as healthy as possible all my life. It seems nerve damage does not care about lifestyles--it comes as it wants.

I wish I could turn the vibrating off tonight--it is making me nuts.

Mine is autoimmune. I carry a diagnosis of Sjogren's which is morphing. My Sjogren's is slightly atypical. I have autoimmune autonomic neuropathy as well. PN came on before the seroconversion.

I too had a very healthy lifestyle. You are correct. Neuropathy does not discriminate. Any one can get it. I was utterly shocked when they told me I had it.

I've been a bit worried about the vibrating sensations and I'd really appreciate some feedback from you.

I've got an idiopathic full-body sensory neuropathy. Whether it's autoimmune or not I don't know, although I do suffer from an undifferentiated connective tissue disease as well. I've led a very healthy lifestyle, by the way, and have no inflammations or infections.

Half a year ago the vibrations started, continuing for several weeks or a few hours at a time. I wake up, sometimes physically trembling in my hands, or my head is trembling discreetly but very distinctly – and fast. This was also the onset for two new symptoms. The sudden spasms I've had before but not like this. When I've gone to bed they start after a few minutes, one spasm after another with around 30 seconds inbetween; a leg, an arm – I've been throwing my arm in the wall several times with a force that might have brought the walls of Jericho tumbling down – the torso itself. This also includes unvolontary movements while I'm still fully awake: one of my hands closing very slowly into a fist, a big toe turning slowly upwards until it hurts, things like that. And the last symptom, very strange: everything that I lean against seems to be moving to and fro. It's like lying in a waterbed. Slowly the mattrass is moving in waves under me, as if I were lying in the water at a mediterranean beach. Sometimes the bed under my torso begins moving sideways, from one side to another without a break (I mean, that's how it feels like). When I'm sitting in a chair and leaning back, the back of the chair is almost wriggling.

My GP ordained Sifrol, a med given to people with Parkinson's disease, that reduced the number of spasms considerably, but the other symptoms persist. They make my life more interesting than I'd care for. My rheumatologist and my neurologist wash their hands, so to speak, and suggest that it seems as if the autonomic system is being involved.

Am I the only one experiencing this, apart from the vibrations?

i was trying to describe the vibration to a neurologist yesterday and i said it was "like one of those small dogs that tremble all the time". he looked at me like i was mad. vibrating cell phone is much better. i get it in my torso. usually only when i wake up in the morning. sometimes subtle. sometimes really strong. and sometimes not at all.

what you describe is what i experience too. in fact i woke up this morning with that vibration. it hasn't happened very much so therefore i have not mentioned it to my doctor but i will on my next visit. it's a very strange sensation. i have PN, EM and Raynauds.

Norah, I noticed that you have Raynauds. I have it too, in fact I had that a while before I learned I was hypo-thyroid, and I think the two go hand-in-hand, as well as other autoimmune diseases. Are you being treated for hypo-thyroidism by any chance? MrsD has mentioned this can be a cause of PN.
Joan

I feel like I am vibrating all the time, have felt like this my first chemo in 1996. Told all the docs and they just shrug, like I am making it up. Worse in the feet, never stops, ever. It is different from the fasiculations I have. Buzzing like an electric shaver.

i will ask the doctor on my next visit if i have been checked for this. it seems like i have had every test known to mankind but it's always possibly he missed this. i appreciate your mentioning it.

i have gotten so much good information from this forum i will be forever appreciative. lots of smart people here and mrsD has helped me more than i can say. to anyone new to this forum, you are in the right place and will be treated kindly by so many.