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#1 | |||
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Wisest Elder Ever
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Some of the stores here do carry it. My primary source went out of business while we were on vacation.
That was a major bummer. A couple of stores carry the Penne, but i was having major problems finding spagetti. I finally found it at Plum Market. If you have a Whole Foods out there, they may have it. Tinkyada is the best I think. Some of the others are fast glucose makers, and that is not good for me either. Tinky is brown rice and digests slowly. It takes longer to cook, and often finishes in the last minute. So I typically watch it then. 2 servings take about 10min for me at a full boil. I put the spirals or penne in soups too. There are buckwheat pastas too, you can use. But I think they are too high a glycemic index for me. Many gluten free people use buckwheat products. You will be paying more for your food...just accept that. The bread is the worst thing to give up IMO. I used to do peanut butter on rice cakes, etc. I never made it to 100% GF, though. My stomach issues calmed down, but that may be because of the few sugars I was eating too. Now that I got rid of fructose, I don't have the GI fast transit problems any more. Many of the GFers make their own bread, tortillas, etc. I always take the magnesium after a meal. Otherwise I get loose, too. Your heartburn may resolve when you get going on GF. It takes time to adjust. So just see what you can do from day to day.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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#2 | |||
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Marty, to be very honest with you, in the beginning, it's much better for you to stay away from processed foods. Your system is being hit with a huge change, and processed gluten free foods are very heavy, they can cause stomach upset. Try to stick with potatoes, rice, chicken, fish, veggies and fruits. Not all "gluten free" labeled foods are created equally...and most do still contain small amounts of gluten. "Gluten free" labeling allows as much as 20ppm of gluten, which can be very harmful for some of us, probably all of us.
I loved Tiniyada, but I can't eat it. Your vitamins may contain gluten. I use Jarrow for my B12, Nature Made for my multi, Natrol for my melatonin and Easy C, and I was using Spring Valley for my Vit D, but they recently changed it, now it is a gel cap and contains soy, so I can no longer use it. Any meds you are taking can contain gluten too, always call the company, never trust a website like glutenfreedrugs.com, they do not update often enough, and they also are not including generics. The fillers in meds and vitamins are generally the problem. It's a huge learning curve, and I know you will figure it all out.
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Deb We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right! |
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#3 | |||
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All of my supplements are gluten free. The only 2 that I can't determined due to the lack of knowledge of terms indicating gluten are the bottles from "Doctors Best" Benfotiamin 150mg list: "Modified cellulose (vegetarian capsule), cellulose, silicon dioxide. Contains nothing other than listed ingredients." Stabilized R-Lipoic Acid list: "Modified cellulose (vegetarian capsule), rice powder, microcrystalline cellulose, sodium bicarbonate, magnesium stearate (vegetable source), and silicon dioxide. Suitable for vegetarians. Contains nothing other than listed ingredients." Right now I'm just sticking to whole rice, fruits, fish, poultry and vegies. That's it. Basically other then all the hidden gluten this is what I've always eaten oh and breads. Thanks for the tips!
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Marty Idiopathic PN - diagnosed 1999 |
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#4 | |||
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I have a total of 4 supplements that might be causing me stomach problems. I either get really bad hurt burn for days or it goes straight through me. I'm wondering what one I should add back in first. Which one is the most important and or might not be the culprit.
They are: R-Lipic Acid 100mg (1 per day) Acetyl L-Carnitine 400mg plus Alpha Lipoic Acid 200mg (3 per day) Co Q-10 300mg (1 per day) Members Mark Omega 3,6, 9 soft gel 1000mg of fish, flax, evening primrose and borage oils. (2 per day) Any thoughts? Thanks Ps. I'm going to post this in the supplements group/forum/board-(what ever it's called) as well.
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Marty Idiopathic PN - diagnosed 1999 Last edited by Marty SLC; 10-08-2009 at 10:07 AM. Reason: added remarks |
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#5 | |||
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Wisest Elder Ever
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I answered this on the vitamin thread.
There is a poster here who reported GI upset from r-lipoic. But many others here have not had that experience. For heartburn issues, make sure you take your supplements (except the B12) with some food, and plenty of water, so they can dissolve properly. My son gets heartburn from B-complex. Always. There is an enteric coated P-5-P which may help. It has B2, B6, and a small amount of magnesium in it. If you are taking B-complex, try, the NOW enteric coated. (it does not dissolve until past the stomach completely). Since you take the Benfotiamine already, you don't need the complex if you switch to the NOW product. http://www.iherb.com/Now-Foods-P-5-P...blets/740?at=0
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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#6 | |||
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Member
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I have stopped taking a B-complex because of the amounts of B's I'm getting otherwise. To make b6 isn't good right? Bummer mrsD the now product has wheat and gluten.
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Marty Idiopathic PN - diagnosed 1999 |
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#7 | |||
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Wisest Elder Ever
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Where do you see wheat and gluten?
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I don't think you can follow a supplement plan if you are not reading posts here or other information carefully. If you decide to take the P-5-P product, to avoid heartburn issues, and you continue with the benfotiamine, and B12 separately, I don't think you need a B-complex separately at this time. Since your Gluten test was positive....I think you will have to be patient, and take care of your diet for a while. This may reduce your GI symptoms quite a bit, or completely. I'd continue the B12 anyway, if you temporarily stop your other supplements. You are most likely deficient in other things too. (some minerals, like zinc and trace others with the gluten reactions). As you improve the inflammation from removing gluten, you may start absorbing other nutients more normally over time. I suggest you visit the gluten forum here and get further advice from people who have done this and succeeded over time.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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#8 | |||
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Member
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As far as finding foods I guess that's going to take going to all the stores and trying to locate gluten free stuff like pasta. Given the fact that I have PN this is going to be hard and will have to get the honey to do it when shes not so busy. Right now it's crazy for her. Thanks for the tips
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Marty Idiopathic PN - diagnosed 1999 |
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