[sheila]

i started having burning with everything else but it has gone from my back to my face even my behind in my arms and hands my feet dont get it that bad all this has happened in a period of aboat a week i take gabapenton 2400 mg a day amitriptaline 2x25 mg at night and diazapham 5mg 3x aday i have an appt with a proffeser of neuralogy on the tenth of december but i cant wait the worst part is my stomach and chest area it just burns i feel like a dragon when i breathe in or out its hot air i have an appt with my very very bad neuro tommorow but when i ask him quastians he just says he doesent know .. my reguler doctor is the one that is prescribing my meds but he says i need to make him talk to me ..and give me ansers does anyone have any advice i cant go another day like this and theres no way i can make it untill the tenth thank you very much

[nide44]

I think that you need to have a 'cocktail' of a pain killer along with your neurontin.
Most of us use something in the opiate, or synthetic opiate class along with neurontin or Lyrica.
I take Tramadol (generic Ultram) @ 100mg 4x day along with my Lyrica, but was taking the same before I switched from neurontin (6+ years on neurontin, plus Tramadol ).
I'm not sure that it can be taken along with Valium (Diazepam) and may knock you loopy, if you do. But the Diazepam is a mild trnquilizer and is used primarily for anxiety (sometimes as a sleep aid), but isn't for pain-usually.
I think that you need a pain killer for that burning.
But 2400 mg of neurontin is just about the base minimum for PN symptoms, as well.
You may need to increase to 3200 or 3600 a day for symptomatic relief.
I think your meds need to be revised, and a different mix may help.

[jakatak]

Originally Posted by nide44

I think that you need to have a 'cocktail' of a pain killer along with your neurontin.
Most of us use something in the opiate, or synthetic opiate class along with neurontin or Lyrica.
I take Tramadol (generic Ultram) @ 100mg 4x day along with my Lyrica, but was taking the same before I switched from neurontin (6+ years on neurontin, plus Tramadol ).
I'm not sure that it can be taken along with Valium (Diazepam) and may knock you loopy, if you do. But the Diazepam is a mild trnquilizer and is used primarily for anxiety (sometimes as a sleep aid), but isn't for pain-usually.
I think that you need a pain killer for that burning.
But 2400 mg of neurontin is just about the base minimum for PN symptoms, as well.
You may need to increase to 3200 or 3600 a day for symptomatic relief.
I think your meds need to be revised, and a different mix may help.

Tramadol is a good addition to the war on PN. However, if it is really over the top, you might want to consider Oxycodone. I've been on it for a couple years, and although I'm not real happy about the addictive nature of the opiate, it does do the trick. Either that, or Oxycontin...a slow release drug that gives you a constant level of pain relief. Hydrocodone also works.....Good luck.

[nide44]

Originally Posted by jakatak

......, you might want to consider Oxycodone. ........., or Oxycontin...a slow release drug that gives you a constant level of pain relief. Hydrocodone also works.....Good luck.

All of these are in the opiate class I mentioned.
Tramdol is the synthetic opiate, milder- and not supposed to be as addictive, but a dependency on a medication, is different from being addicted to it. If a med lets you lead a normal life and does not get you high, a dependency is a good trade-off.

[dahlek]

Two issues are going on here?
First off the SPREADING of that burning. If it were me? I'd call the neuro I'm to see in Dec [not too far from now? really] and explain HOW things are progressing. Where and how bad. I do believe many prior posts can give you the 'right words' to write down...and YOU DO right them down. Make a list of what's happened from day one to day now? and where things went sort of fast? I say that because that's what happened to me.
Be very clear about your stomach and chest feelings. And Concise. Think of ONE WORD descriptions that are most 'right' for what is going on.
Second issue? -Call your regular doc and ASK....should I go to the ER? Me? I wish, in my own case, I'd not, but rather went directly to the neuro....but it's water under the bridge. My regular doc said go to the ER where even morpheine didn't numb that pain. BUT yours, with the breathing should get you treatment and FAST! Tomorrow morning first thing! Promise me you will call your docs? It's crucial for your long term health and well being to get seen and tested and hopefully helped ASAP!
My heart is with you for the duration! Just let us all know how things go! IF docs don't call you back by mid day? Call again! Then call again at 3PM! You are having a real problem if you can't breathe or you are having stomach problems to boot? As I said, write it down, make a list, then check it off!
I know it's HARD to keep it 'short and sweet' when you are in OH!MY GOSH!!-what the fruitcakes is going on?- mode? But, writing it down and keeping it to that list HELPS both you and your docs FOCUS Also It's useful to write it down, then keep a picture of what you wrote in your mind? Cause many, many docs will be asking you all sorts of relevant and then some truly silly questions... And they'll ask...over and over and over again! Being consistent helps a BIG bunch. Besides? Breathing is a very useful thing? If you've not noticed?
Take deep[mental] breaths before you speak to any one, I know it's hard, but you've GOT to stick to facts that can help the docs...even if you are in that PANIC MODE - and you are near that now...I can tell, cause I've been there myself. More than once?
Keep having faith that docs get 'smart' about what is happening to you! And then do something right!! Hugs 's and hope always! - j

[homer80]

I am a new member, I have been having similar burning for the last couple of weeks after a few months of just my normal pain. I would like to ask Dahlek how long it took for his similar experience to calm down after going to the ER. Thank you