I test perfect on everything that can be tested in my area.

Spreadsheets
 

Hi Optimumeg - sorry - I cant remember - what is your diagnosis? Is it definate? When you say "in your area" does that mean the type of neuropathy that you have??? (sensory, motor, etc etc????)

Remember - you can start out with mild symtoms at first (I did - just numb hand and foot - wheelchair within two years) and progress quickly and if a cause can be determined you are way ahead of the game.... just concerned that your docs may be just sitting back and waiting - and if they arent proactive you'll be the one who pays for it.....

:confused:

I was informed some of the blood tests were non standard and had to be done at places not in my area.
I have peripheral neuropoathy in my hands and feet. Its mainly sensory with some motor.
My doctors are worthless, I know this, they just pawn me off to the next guy and give me painkillers.

It is important to understand that this study does not necessarily apply to most folks with PN. It appears to be a sample of people that the authors accepted for their nerve decompression surgery. This has been and continues to be very controversial. People have posted in various forums who have had a wide range of outcomes. It may be that Dellon et al have identified a marker to better identify those who who would have a better surgical outcome, but of course, there are a lot of other factors involved.

This finding in no way applies to the general population of PN'ers. So, the "excellent outcome" that is referred to applies to surgical outcome - that is all. Also, I would imagine that the subject pool are those candidates who have already been pre-screened and deemed acceptable for their surgical technique.

Now of course, if you are considering this surgery, then it may be relevant. But even then, I would caution that the picture is usually much more complicated than boiling it down to a clear and definite probability statement. Thus, it would be wise to actually read the entire study and have it reviewed by another doctor or someone who can comment sagely.

rafi

I would assume this idea of a tinel sign correlating with a recovery applies to surgery and non surgery. If you have no tinel sign and total numbness, it is probably because the nerve is completely dead and can't transmit anything. That's just my idea though.

I was a Dellon method patient. . .
 

It may be that Dellon et al have identified a marker to better identify those who who would have a better surgical outcome, but of course, there are a lot of other factors involved.

"This finding in no way applies to the general population of PN'ers. So, the "excellent outcome" that is referred to applies to surgical outcome - that is all. Also, I would imagine that the subject pool are those candidates who have already been pre-screened and deemed acceptable for their surgical technique.

Now of course, if you are considering this surgery, then it may be relevant. But even then, I would caution that the picture is usually much more complicated than boiling it down to a clear and definite probability statement. " rafi

Rafi - I agree that perhaps it is only a marker that Dellon has found as I was positive on all his tests and had 4 tarsel tunnel (2 each foot) surgeries done by a Dellon trained podiatrist. 2 1/2 yrs. post surgery I continue to deteriorate, a good sign that the surgeries were not a success! It's too bad for me, left with extreme pain, and too bad for the podiatrist who was the nicest doctor I've ever had and one who would have done anything he could to help me.

nancyh

Optimumeg,
After reading your post yesterday I put the pads from the ReBuilder on the nerve area of both feet and buzzed them for 30 minutes. 4 pm is the time of day when my feet and legs have tightened up and give out for the day and its usually couch time for me. 5 pm is the time for my last Tramadol dose of the day. When I got up to take the meds my feet and legs felt very lite and the movement was fluid like. Pushing it a bit further I went out to the shop to finish up one of many projects laying around, before long 2 hours had passed and the lightness still remained along with an itchiness in the legs. Around 8 pm I tapped on the nerves and found a greater response in the toes as they curled slightly. As I post this, this am my feet are numb in the balls of feet and toe area, the legs are free of any tightness and pain. Will keep this treatment up 3 times a week and see what transpires. As for thought of any surgery no way, I read the plights of too many folks who have been put to the knife. If you have time you might put up a poll on the amount time per week being on these forums and researching PM. Thanks again

It seems from reading your post that applying the rebuilder there helped significantly? Pain and tightness in the legs seemed to disappear and you were able to use your legs/feet longer. Are your feet normally numb? Has the location I mentioned helped you more than other areas? What other areas have you tried?
The location of the tinel sign is where the tibial nerve (which supplies the bottom of the foot) reaches the surface. There is also a peroneal nerve tinel sign location, and I need to find the saphenous and sural nerve spots.

negative on tinel sign
 

My toes and feet are numb to varying degrees and different times. Mostly always blue and COLD when really numb and can warm up for no known reason too.

Aggrivating, so aggrivating. The progress totally stopped. I magically started healing, and now I'm magically not. :(