I just reread this thread and am comforted by the fact that in one year, at least my neuropathy has not progressed. My feet are much the same as last year. Now I do have an official diagnosis, if you can call it that. I have officially been diagnosed with peripheral neuropathy in my hands and wrists with small fiber neuropathy in my legs, feet, and shoulders. I do have cellphone type vibrations in my feet now, and the burning sensations in the balls of my feet, but, I am hoping that is repairing nerves from B12.

Still negetive on the tinel sign.

PN can be progressing in other parts of your body, and you have NO clue.

Read up on Autonomic Neuropathy.

PN is a fish net full of all kinds of fish and mammals....things are not what they always appear to be.

I may be confused on this post. Anhow my pain started and for the first many many months of agony was the left inner ankle/foot/calf. I actually had sent my records to that Dillion with no offense I think he is a sales person. He was ready to do tts surgery on me over the phone.He told my mom for him to do the surgery the money would have to be upfront and not through insurance and I sounded like a cadidate and then weeks later I got a follow up if I made a choice. Then my foot/ankle doc who did 2 nerve shots in the tts said how I should not do it and how he went to conferences with dillion and felt he was a sales man too. Maybe I am wrong and he has helped some but I still felt for me it was not good. Also my symptoms have also progressed to different areas being more like rsd possible fibro too. I do have pn as well. My symptoms are up and down and all around. Many times there is no connection to what I have done for ex. It is so frustrating. I have had to change my outlook too. I used to think it was like a broken leg that it goes up hill. My neuro said with nerve pain its like a roller coaster. That is true and I hate it but I hope one day I can get off if you know what I mean.

Tarsel Tunnel Syndrome is controversial and is a red flagged diagnosis for insurance companies.

The jury is out on it. I would not rush to have procedures done....it is best to make sure that the foot is the only problem. Again, AN is a form of PN and folks may often miss the insidious symptoms of AN. There are just so many forms of PN and so many causes, many I am sure, yet unknown.

If the PN stays in the foot as painful as it is, it beats having it set up housekeeping all over the body.

We know so little about the nervous system...I lean towards the least traumatic approach possible.

Let's not forget Fanfaire who made that trip through the sleet and rain
had to go back to Mayo through all that again.
Kemb has been through it all,we have gone through,many of the
same things. I had PN before my legs were crushed in a head on collision.
I was near a tiny hospital,with a bad reputation,but I couldn't say
I'll walk 60 miles back to Columbia,because no matter how many people
I asked accept the man,holding my hand on the side of the road would
answer my question ,are my legs still there.

Everything at the hospital didn't work mri's out,e-rays out so on,I was there for hrs. I guess there phones were out,they finally called my mom
very late at night,even though I begged,call my son,we will when the Dr.
gives us permission...I new that ER DR. for years,asked for something for pain,
not yet , finally they made the calls to family. Son said fly her to Unversity
or i'll come and get her. They had a Othopedic Dr.who is no longer one,
I'm yelling get him in here,back comes ER Dr. will you come back to see
him what no,he never came.My mother called my neuro where I live,she called
ER,he said we are going to really dope you up and fly you to the truma center
where old Sue lives. They knocked me out,but took me by amblunce,didn'
let anyone know. So i'm in a wheelchair after years and still lots of PT.
Do I have pain you bet. My middle finger was pushed down in my wrist,
and shattered,lung collapased,and so on.

I take pain meds. and suppliments but it's meditation and a very weird sence of humor...D is right it is like being on a roller coaster for a lot of us,but
I'm hanging on for as long as I can..life is hard but can be so good as well.
but sometimes I cry that's a theraputic thing as well..There's a darling
Bobby who writes The world is not made for wheelchairs,it's mot. But
you just do your best,,that's all anyone can do...My hand hurts and so do
your eyes..Polyneuropaths and more. We are different but so much alike.
Sue

Oh yes I was in pain,teeth crushing pain,screaming pain.What did I do
metal from knees to ancle's have a tarsal tunnel con job. Insurance
paid for it then...But so many done to people in pain and elderly,it
helped to make things so much worth..I can even talk about it. But
please don't even consider it... Sue and I know I'm the one
who said yes,hope none of you do..

Sue I am so sorry for all you have gone through and still do. You have a good outlook and I try to remind myself to focus on what I can do and try to leave the rest up to what happens. It is so hard as you know. I will say after so many doc apts and so many opinions even docs being negative about other docs or there ideas for treatment it will take a lot for me to do anything invasive. I know things can always be worse and yes there is a chance it could get better from an invasive treatment but its like winning the lotto and my luck sucks. I will say I feel doc prey on people. I have felt like this from inpatient treatment even before the pain. People are volnerable and want help so they can charge crazy fees for hope. Do you know inpatient treatment a day is 1600 a day. This is not the ritz at all. You share a room,crappy food etc. Sorry to get off a little. Even the holistic doc for pain I saw I felt was trying to be a sales person having me buy off his website. I don't know we have more technology now but I feel the care is different. Before you would call after hours and there would be a number to call now 9 out of 10 times it says call 911.

You are so right Cyclelops--PN is in other parts of the body and even if you have a clue, the doc doesn't. I know it's in other parts of my body and they don't believe me. I know it's in, how do I say this--everywhere. I can lay a heating pad on my tummy, and not feel the heat. I get a UTI and I do not feel the pain until it's really bad, the neuropathy masks it so well. Still, the doctors will say, "Why did you wait so long to come in?" I know it's there, but convincing them is another story! I guess it's the small fiber neuropathy--who knows?

My last visit to the neuro, he shoved his fingers into the nerves in my shoulders and says, "Your shoulders are not in good shape!" Well, they have been on fire since that day, especially the right one (last Friday)! Next visit, in April, I may take a ball bat with me. Why would a doctor, who is suppose to know all about nerves, press so hard on a nerve, that he injures it? The nerve is all bunched up now and I have so much pain, laying on a heating pad every night--I am so angry with him!