Feet, legs up to above knees completely numb - will get tingling in one foot after IVIG..... or if really overtired..... no realization when I get cut on my feet or legs either - which is not good - have to be very careful... (usuually the trail of blood is a sign)

and this means??????

The reason for this thread is:
http://www.ncbi.nlm.nih.gov/entrez/q...&dopt=Abstract

"In idiopathic neuropathy, the presence of a positive Tinel sign had a sensitivity of 95%, a specificity of 56%, and a positive predictive value of 93% in identifying patients who would have a good/excellent outcome."
Is the main thing.

Optimumeg,
Thanks for putting this up, it will now be an area for the ReBuilder to concentrate on

About 6 weeks ago I had almost no Tinel sign. I would have to hit somewhat hard to illicit a response and currently I get a great tinel sign. There is hope for everyone without a tinel sign at least from my experience. Now, of course in a healthy people you shouldn't get one, but to the injured it is actually a plus. When I had lost the sign my feet were cold and dead numb.

to an injury? Possibly a traumatic one? Trauma injuries and some forms of resulting numbnesses are common, diagnoses in determining what is or might be short or long term 'temporary' [hate that WORD!] are varied and downright strange.

As one who has had a clear cause-effect Carpal Tunnel issue several years before PN onset... the distinctions in terms of pain levels, pain constants and nerve conduction study results are clear and explicit.
When one acquires an agressive neuropathy, the Nerve studies actually show normal or above normal....AT FIRST. Ironically, should apparent personal perception of nerve function and deterioration occur after such tests, at a time when possible agressive treatment/therapies should be administered-but are not, as diagnostics-to-date do not, warrant extreme treatments...well, by the time diagnostics catch up to the real issues...it's too late! Damage done often irreversibly. Only therapeutics can help. In the meantime...all later tests for adverse effects do occur. The time can be from 1 week to one year, to 10-20 years! In the meantime, PAIN.

Then it's only a band-aid on an open-would type of treatment....UNLESS you can cooperatively and effectively communicate with your doc....in a non-agressive manner. Some are lucky, some not. Depends on the doctors, their people skills and diagnostic skills. LOTS of variables that can help or hinder a diagnosis.

Tinel sign is only ONE aspect in assessing the total picture. ONE piece of the puzzle? Yes. How large a piece is what each of us ask about blood tests, emg's, ncv's, you name it!

IF any had the ANSWER, would we need to be here? Good thoughts always, and pain free minutes, if not more.... - j

My neuropathy? Not sure why I have it.

www.Lizajane.org 's tests? Where do you stand on that?

Any clue? - j