IT AIN'T FAIR, Jack!

It really isn't.
Most of us here are intelligent, informed sufferers and we have been dealt a card from under the deck! We should be living healthy, happy, pain-free lives.
Skiing, sailing, bowling, tennis, football, baseball, ....... you name it !!
And we should be doing all of the things we have loved to do all our lives, instead of being held captive prisoners of a neurological disorder/disease that has no known cure!

I'm mad as hell and I don't want to stand for it anymore!!

But, y'see.........we have to!
We have to 'bite the bullet' everyday of our lives - 'cause there really is no other choice.
Resignation to the fact that we have a chronic ailment is half the battle.
We won't lay down and give up hope, but we have to be realistic enough to see the forest for the trees. (I just love trite analogies)
Ya gotta maintain a sense of humor and occupy your mind and your time with enough other crud to keep yer mind off of the PN. When I'm really busy, I forget about it...mostly. At least enough so I'm not constantly whining and miserable.

Those closest to us have to deal with us .... and we with them.... or we lose them.
Constant whining and complaining and self-pity, makes us look not so attractive, y'know?

Its bad enough that we gain weight, have trouble walking, trouble going to the fair, shopping in the supermarket, even going to the mailbox ... but we just have to 'tough it out' and keep on truckin'.
Take the damn pills! At least they help. Better than nothing.

Every morning, when I'm not really awake & I look into the glass of water, spoon the Metamucil "Clear & Natural" into it (cause the Lyrica is constipating) and start to take down the 10 or 12 bottles of Rx's and supplements and vitamins -
I think "I'm so tired of doing this crap that I could puke!!".

When I'm rubbing my feet with menthol cream that smells up the whole room, I think that I'm becoming an absolute freak that can't just put on my shoes and go to work.

When my legs feel like cement and it takes me 3-5 times as long to climb the stairs as I used to, I think that I'm such a burden on everyone around me because I cannot just do, what 'normal' people do - walk up stairs!

Jack, you've got a lot of company...... so have a pity party here, and don't bother anyone else with it. That's why we come here, cause its a group who understands.
There are a lot of people here... some who are a lot worse off than I am. I'm fortunate that I'm not worse than I am and thank my lucky stars that at least I've found a community that I can come to.
Its my daily fix on reality, and my release when I need it.

You've got company, Jack ...... a lot of it!

Bob, you almost bring me to tears. I have identified with you from the start. My wife, as much as I do love her, she just doesn't understand like you do. I find your response so supportive and caring. You are one heck of a nice guy. Thanks everyone, and especially you Bob.

I will speak for me, and not others. I'm driving home....not a care in the world.....and BAM, that was the beginning of the end for me. Shooting pain in my foot. Out of the sky blue! And since then.....whew! Thanks everyone.

Your one good asset is being able to visit this forum sharing your feelings with those who can relate to your malady. About 10 days ago I saw the foot surgeon at the VA hospital for my Lyrica renewals and ask for and received a Lidocaine injection for this neuroma that causes me the most discomfort, well it didn't do what I had hoped and as I type this its doing its usual night time throbbing and shooting electrical reactions up my right leg into my hip. The left leg and foot where the PN started don't bother me much any more and is twice as strong as my right. I force myself to tinker around in the shop as I can't stand setting around and it helps get my mind focused on something constructive. Its a shame the lot of us is not together playing in a pinochle game tonight and drinking green tea. Hang in there for this too shall pass and the sun will bring a new day.
Lanny

...and I'm sure my wife is tired of hearing me complain about it.

I am interest to hear more about the stair-climbing effects. In the morning I can climb the stair to my bedroom and bathroom just as a normal person would. Even run up the stairs. Evenings? Most of the time my wife goes upstairs to fetch my "home" clothes because after 5, I have only one (1) effort to go upstairs in me and I save it for bedtime. When I go my legs feel like cement and I have to also use the handrail to help pull me up.

Where's the dignity in that?

Complain away fellow sufferers... I hear ya'

Cowboy

It truly isn't fair!!!!!

I suffered through over 2-1/2 years of horrible SSRI withdrawal symptoms just to be rewarded with body-wide, painful neuropathy at the end of my taper of the drug. I have a dream job that I may have to walk away from and a wife and 15 month old daughter who rely on their father for support. I just want to wake up from this nightmare but realize that just isn't possible. That is my rant for today!

ive had pn for 8 years, lost a career of 18 years i had prepared for, was going to be promoted , spent years furthering my education while working in addition to special training, seminars etc to advance up the career ladder, ran 8 miles a day, all gone in a flash. Now between PN and COPD not working, every step is painful and legs feel like cement with an exertion. Getting that blank look when i explain to doctors how i got PN, the best they come up with is ideopathic. But if i had to do again what i did i would.

Since95, I was on SSRIs for a while in the 90's combined with tricyclics, now a 'no no'. There have been times I wonder how much these drugs caused. I can not touch anything with the least amount of SSRI in it or I get a total autonomic meltdown.

I have no explanation for how I got PN, but I know now I have an autoimmune condition.....of dubious causes.

SSRIs are not the benign drugs they have been played out to be....and they are hidden in compounds for many conditions. I had a Zofran shot for nausea that caused 8 hours of non-dopamine responsive dystonia! Zofran is a type of SSRI. Tramadol has SSRI. Be careful.