Thanks Echoes. I do love the beach, you know that, but walking in the sand is so difficult. Getting to the water I can handle, it's mostly downhill, getting back to the car, uphill, is another issue.

I have to edit this statement. Gluten was causing my B12 deficiency, which in turn damaged my nerves. Of course, gluten doesn't just mess with B12, it causes many vitamin and mineral deficiencies..I am also dealing with iron and Vit D issues.

Anyone with neuropathy, should check into gluten too. They are finding gluten to be a problem with more and more people every day.

Mine was caused by Prediabetes & I was low in B12, it started in my feet then went up my legs, some large nerve involvement going by an emg but mostly bothered by the burning & electric like jabs and numbness.
For the last 2 years I have been symptom free, everything is back to normal, it took 5 years to get to this stage though.

I do hope they can find the culprit causing your neuropathy.

Was reviewing a journal from 2007 the year I cut off a finger while working in my shop and today I can say I'm during better after having PN over 5 years. This I believe is due to using this forum and getting a better handle on this condition. I have a better understanding of PN and I believe the body has in some way accepted the pain in a funny sort of way. I have tried many meds and supplements and can cope better after going on Methadone along with the Lyrica. Staying busy with some projects I'm able to handle keeps my mind occupied and my butt off the couch. I sleep better now than I use to and I have accepted the fact that I will go to the grave with this crap, but to me death is a new beginning so I try to enjoy the day.
Lanny

Five years!? Holy moley! But, if that's what it takes, I'M IN!! and ON MY WAY!

Nope. If anything, it's gotten worse.

Hi Brian,

My PN sounds similar to your symptoms. I have Idiopathic PN, but have been told I'm prediabetic. I'm 53. My PN has spread the last 10 years from a toe on my left foot to both feet and up my legs into my calves. My symptoms sound similar to what you described. What did you do to get your PN to go away? Is it still gone? I have tried supplements, different diets, creams and oils, with the PN continuing to spread over time. I have so far avoided taking pain meds, or prescribed RX. Sometimes the pain levels get really unbearable and I feel pretty desperate. I want to get over this and would love to know what worked for you if you can email me.

Thanks,

J Stewart

Amitriptyline low dose works pretty well...did you ever try that ? Why do you want to avoid prescribed RX if the pain seems to spread?