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08-05-2010, 06:31 PM
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#11 | ||
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diagnonsense it sounds like you suffer from HMSN Type 2 (Heriditory Motor Sensory Neuropathy Type 2 Axonal) Hope thats helps.
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| "Thanks for this!" says: | Kitt (08-05-2010) |
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08-05-2010, 07:41 PM
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#12 | ||
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Grand Magnate
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Quote:
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Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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08-06-2010, 08:50 AM
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#13 | |||
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Magnate
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This may be a dumb question, but, are EMGs abnormal in any of the CMTs? Or is it strictly small fiber and only found on skin biopsy?
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08-06-2010, 08:54 AM
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#14 | |||
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My PN is apparently hereditary since my mother has it too, although the nature of our pain is different. At Mayo they diagnosed me with small-fiber sensory neuropathy. I have no motor involvement. It sounds like CMT (Charcot-Marie-Tooth disease) generally has motor involvement. Does it always? Is it still possible that I have CMT with no motor involvement. The pain started slow and has progressed over 7 years.
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08-06-2010, 09:22 AM
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#15 | ||
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Grand Magnate
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Quote:
http://www.charcot-marie-tooth.org/a.../diagnosis.php
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Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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08-06-2010, 09:26 AM
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#16 | ||
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Grand Magnate
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Quote:
http://www.charcot-marie-tooth.org/a...t/symptoms.php Symptoms of CMT vary greatly even within the same family. The same type that is diagnosed in a family member is what the rest would have if they do inherit it. Symptoms can become evident when you are young, old, or in-between. Or they might not ever be that evident. CMT is a complicated syndrome.
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Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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08-06-2010, 09:29 AM
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#17 | ||
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Grand Magnate
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there is a thread concerning PN, tips, etc. In that thread I have information concerning CMT.
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Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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08-06-2010, 09:33 AM
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#18 | |||
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According to Mayo, this is what I have: "Length-dependent sensory axonal peripheral neuropathy due to #2 and #3" Unfortunately, I don't have a clue what any of that means. -sigh- I just want a simple explanation that I understand without words like axonal and sheaths--I have NO idea what those are and as much as I have researched them, I can't comprehend it.
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. ♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥ My name is Sarah and I am 25 years old. I have a lot of chronic health problems. Peripheral neuropathy and POTS (postural orthostatic tachycardia syndrome) keep me bedridden the majority of the time. I also struggle with degenerative disc disease, disc desiccation, spondylolisthesis, arthritis, polycystic ovarian syndrome (PCOS) with insulin resistance, allergies, sound sensitivities, and other health problems. |
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08-06-2010, 09:41 AM
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#19 | ||
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Grand Magnate
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Quote:
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Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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08-06-2010, 09:43 AM
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#20 | |||
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Yeah, that's what I'm talking about. Thanks... those are simple terms. I want so badly to understand exactly what my diagnosis means... but I can't break it apart and figure it out because it just doesn't make any sense... PN is so complex compared to all the other medical problems I have--I have no trouble understanding those.
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. ♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥ My name is Sarah and I am 25 years old. I have a lot of chronic health problems. Peripheral neuropathy and POTS (postural orthostatic tachycardia syndrome) keep me bedridden the majority of the time. I also struggle with degenerative disc disease, disc desiccation, spondylolisthesis, arthritis, polycystic ovarian syndrome (PCOS) with insulin resistance, allergies, sound sensitivities, and other health problems. |
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| "Thanks for this!" says: | Kitt (08-06-2010) |
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for diagnonsense
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