Reply
 
Thread Tools Display Modes
Old 08-06-2010, 04:12 PM #1
smae's Avatar
smae smae is offline
Member
 
Join Date: Jul 2010
Posts: 458
10 yr Member
smae smae is offline
Member
smae's Avatar
 
Join Date: Jul 2010
Posts: 458
10 yr Member
Default

No, that does help a lot... thank you. The only thing I don't understand is this... that all makes sense.. but I was told at Mayo that I have large fiber PN and that explains why I have motor and balance issues along with the sensory issues. I do have a lot of issues with balance... and I also have problems with my feet 'disappearing' on me. I don't know what else to call it.. but I lay in bed and suddenly I don't know where my feet are if I'm not looking at them. I can't tell how far apart they are, if they are touching, if my legs are crossed, etc. It only happened in bed until recently, and now it happens when I am walking if I walk too much and my feet go numb--my feet feel like they melt into the carpet and suddenly I lose sense of where they are altogether. I was told that was a part of motor issues, not sensory. Is that incorrect?
I really appreciate how you broke it down for me--thank you very much!
__________________

.


♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥

My name is Sarah and I am 25 years old. I have a lot of chronic health problems. Peripheral neuropathy and POTS (postural orthostatic tachycardia syndrome) keep me bedridden the majority of the time. I also struggle with degenerative disc disease, disc desiccation, spondylolisthesis, arthritis, polycystic ovarian syndrome (PCOS) with insulin resistance, allergies, sound sensitivities, and other health problems.
smae is offline   Reply With QuoteReply With Quote
Old 08-06-2010, 05:59 PM #2
malawigirl08's Avatar
malawigirl08 malawigirl08 is offline
Member
 
Join Date: Mar 2010
Location: Scotland
Posts: 315
15 yr Member
malawigirl08 malawigirl08 is offline
Member
malawigirl08's Avatar
 
Join Date: Mar 2010
Location: Scotland
Posts: 315
15 yr Member
Default

I may be making this up but I would imagine that the sensory nerves again are sending mixed up messages to the brain and then a mixed up message is being sent to the motor neurons so they stimulate the muscles to do the wrong thing and you lose your feet for a while - also the numbness in the feet mean you are not as aware of your surroundings so you may not lift your feet as much as you need to to clear the ground so you end up stumbling.
i have the exact same problem with stumbling and not being able to sense where my feet are at times.
Anyway this is only my theory someone in the know may come along and correct me-it is a long time since I studied this at Uni and my brain fog is quite bad at the moment.-I am having Lidocaine Infusions to help me with pain and this has worn off - I am waiting on another treatment next week so it will be sleepless nights and lots of pain and brain fog until then boohoo!
malawigirl08 is offline   Reply With QuoteReply With Quote
Old 08-06-2010, 06:38 PM #3
smae's Avatar
smae smae is offline
Member
 
Join Date: Jul 2010
Posts: 458
10 yr Member
smae smae is offline
Member
smae's Avatar
 
Join Date: Jul 2010
Posts: 458
10 yr Member
Default

Okay, thanks... I'm just so confused because they told me at Mayo and at my neurologist's office that it was large fiber neuropathy that I had, not small fiber... and I just concluded on my own that I had to have small fiber as well because I have ALL the symptoms, I just didn't have all the correct tests for it... but what I posted came directly from the report from Mayo--yet they told me I had large fiber, not small. I don't understand that... I'm going to call on Monday (both places--Mayo and my neurologist's office) and see if they can send a report (in simpler terms, like large and small fiber neuropathy) of the diagnosis of what they believe I have as well as what they have suggested for treatment thus far for my records. I'll see what they end up sending me...
__________________

.


♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥

My name is Sarah and I am 25 years old. I have a lot of chronic health problems. Peripheral neuropathy and POTS (postural orthostatic tachycardia syndrome) keep me bedridden the majority of the time. I also struggle with degenerative disc disease, disc desiccation, spondylolisthesis, arthritis, polycystic ovarian syndrome (PCOS) with insulin resistance, allergies, sound sensitivities, and other health problems.
smae is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitt (08-06-2010)
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 02:52 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.